Does anyone have major body pain? Or body pain that went away? Before all of this I could hike for miles, do yoga for hours, and dance a lot. My hips were very, very strong now when I walk it’s not neuropathy exactly but everything feels jolted and burning, but not necessarily in a tingling way. It’s really hard to explain. It feels crickety and just so off. I also have a lot of pain in my hand when I type or write and I can’t seem to make the motions when I do cursive as fluid. It is truly bizarre.

4 hours ago, Redding said:

Does anyone have major body pain? Or body pain that went away? Before all of this I could hike for miles, do yoga for hours, and dance a lot. My hips were very, very strong now when I walk it’s not neuropathy exactly but everything feels jolted and burning, but not necessarily in a tingling way. It’s really hard to explain. It feels crickety and just so off. I also have a lot of pain in my hand when I type or write and I can’t seem to make the motions when I do cursive as fluid. It is truly bizarre.

I think we can all relate. I have had a lot of back and shoulder pains I didn't have before. My back even clicks and can be quite painful when I sneeze. Also painful knees at times. I think it's pretty common tbh

7 hours ago, Redding said:

Does anyone have major body pain? Or body pain that went away? Before all of this I could hike for miles, do yoga for hours, and dance a lot. My hips were very, very strong now when I walk it’s not neuropathy exactly but everything feels jolted and burning, but not necessarily in a tingling way. It’s really hard to explain. It feels crickety and just so off. I also have a lot of pain in my hand when I type or write and I can’t seem to make the motions when I do cursive as fluid. It is truly bizarre.

I’m a pretty active person, and am trying my hardest to stay active during all this as a way to cope with the symptoms. I find that I’ve gotten a lot of little weird, nagging injuries that seem to be caused by the sports I do, but that I’ve never experienced before. Not sure if that’s withdrawal or what 🤷‍♀️. I also have new lower back pain and stiffness. I spend a lot of time these days stretching and doing rehab exercises…sigh.

9 hours ago, Redding said:

Does anyone have major body pain? Or body pain that went away? Before all of this I could hike for miles, do yoga for hours, and dance a lot. My hips were very, very strong now when I walk it’s not neuropathy exactly but everything feels jolted and burning, but not necessarily in a tingling way. It’s really hard to explain. It feels crickety and just so off. I also have a lot of pain in my hand when I type or write and I can’t seem to make the motions when I do cursive as fluid. It is truly bizarre.

Body pain is real as we come off. I love hiking and now, it feels like I'm 100 years old. I still try my best. I sometimes feels fatigued, etc. my major body pain now is on my shoulders, neck area, and upper arm muscles. It gotten better, but it still comes out. I was never like this before medication. I was active and doing a lot of backpacking and hiking trips ...

Yep, I feel like a grandpa with aches and pains everywhere, including a messed up cardiovascular system which causes me breathing issues. Feels like I am on the verge of dying sometimes when mildly exhausting myself. And what if this is SFN or something like dysautonomia caused by the drugs? I don't think that's farfetched.

Edited June 23Jun 23 by MischaDE

15 hours ago, Redding said:

Does anyone have major body pain?

Yes!

15 hours ago, Redding said:

I also have a lot of pain in my hand when I type or write and I can’t seem to make the motions when I do cursive as fluid. It is truly bizarre.

@Redding Do you feel that the pain is stronger in one hand compared to the other?

Edited June 23Jun 23 by The Dust

Yes I do.

I have a lot of aches and pains that come and go. They tend to flair up about 5-7 days after I drop down off my medication, then settle about 2 weeks after that.

I have found using Magnesium Citrate to be helpful for joint pain. I have also been meaning to take fish oil, as other people on this site have recommended it as a supplement.

I also spent a lot of time stretching out tight and sore muscles. I try to put a positive spin on it, using the stretching time to also engage in deep breathing, kind of like a moving meditation. Thanking my body for how hard it is working to readjust to the limited drug supply.

I hope your body starts to heal and you can keep exercising. Exercise has been my lifeline while de-prescribing.

I'm in this club. Used to be able to do all sorts of Pilates moves. Now I'm a big injury. Hard to imagine it's the meds but since it's so common I'll believe!

Yeah it’s not just soreness or tightness it feels like Ligament damage and lunbrication ifs hard to explain I don’t really feel in my body and when I do, it’s like it’s all burnt I used to feel so comfortable and fluid like I could dance and move and now it’s crickety and then there are actual pains like right now I have this weird loose feeling ligament in my left hip and that are burning on my outside of my right hip and then all these weird ligament feelings in my shoulders and burning down in my hands. I don’t think most people in withdrawal have this. I think it’s because I had a severe reinstatement injury. Some of the comments are helpful but a lot of of the times I just feel more misunderstood and alienated. I really appreciate everyone trying to help but it’s not like before I remember when I was in withdrawal… Before my reinstatement injury when I was Just’in withdrawal and I would have aches and pains, but I still felt in my body, and my body still felt somewhat strong. That was so much more manageable than this overall just bizarre feeling like I am a papier-mâché doll. Whose limbs are constantly being pulled and yanked and burnt it’s Just comprehensible.

1 hour ago, Redding said:

I don’t think most people in withdrawal have this.

I have. I also have burning sensations in my joints and in my hand(s).

On 6/23/2026 at 4:16 AM, Redding said:

Does anyone have major body pain? Or body pain that went away? Before all of this I could hike for miles, do yoga for hours, and dance a lot. My hips were very, very strong now when I walk it’s not neuropathy exactly but everything feels jolted and burning, but not necessarily in a tingling way. It’s really hard to explain. It feels crickety and just so off. I also have a lot of pain in my hand when I type or write and I can’t seem to make the motions when I do cursive as fluid. It is truly bizarre.

I too get weird body aches, neck, shoulders, knees, feet, back, chest, just about everywhere.

2 hours ago, Sonia2 said:

I too get weird body aches, neck, shoulders, knees, feet, back, chest, just about everywhere.

Same here....

Just want to add to the pile.

Every since I was on citalopram, I began to get a weird pain/ache on my left shoulder and left side of my neck. It comes and goes but comes during flares or when I taper. But this one is the most consistent.

But overall I'll get pain and aches everywhere in my body: arms, legs, joints, hips, eyes, head, fingers, etc. They will ache, burn, or sting.

Thankfully they come and go and stretches sometimes help, but I feel so old despite only being like 23 now lmao.

13 hours ago, yoshi4844 said:

began to get a weird pain/ache on my left shoulder and left side of my neck

@yoshi4844 ...I have the same pain in the same area for months. Now, it also come and go. Interesting that we all get the same pain in the same area. In the last few days, I have felt it on and off and weaker too.

7 hours ago, Raymond said:

@yoshi4844 ...I have the same pain in the same area for months. Now, it also come and go. Interesting that we all get the same pain in the same area. In the last few days, I have felt it on and off and weaker too.

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