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Jennings: Still Down in a Hole

Jennings
Jennings
in Introductions & Ongoing Recoveries

Featured Replies

  • Author

I'm in a massive wave, neuro emotions, burning mouth, burning wrists, burning stomach.

Just a nasty feeling all around. I'm not even sure how I get through the days when I'm like this.

It really is crazy how when I get in a wave, I feel like I'll always be in a wave and I've always been in a wave.

A whole bunch of psych meds starting in 2014, I am now only on Lamotrigine:

 

Current dose 6mg(1/26)->5.8(2/26)->5.6(7/26)->5.4(8/26)

Hey @Jennings -- so sorry to hear you're in a bad wave. I empathize with just needing to blindly put your head down and survive the day when you're like this. I'm in a wave myself and I find the "neuroemotions" in particular so hard. It's difficult to distract or use other coping skills when all your brain wants to focus on is complete despair.

It's funny how short our memories can be. I totally agree that when I'm in a wave I can't remember what feeling good is like and I think I'll always be like this. But then when I'm in a window I totally forget how bad the waves can be and I'm shocked at how bad they are when I get hit again.

I hope your wave passes soon.

I’m not a medical professional and cannot offer medical advice. I am new to this journey and my thoughts are based only on my personal experience with psychiatric drugs. This is a peer site where we support each other on our taper/recovery journeys. 

Current regimen:

Cymbalta - 90 mg/day

Seroquel - 12.5 mg/day

*holding to stabilize as of Apr 2026

 

History:

Seroquel - up to 50 mg as needed for sleep (generally 6.25-12.5 mg a few times a week, though sometimes more) - 2009 (ish) to present

Cymbalta - 60 mg/day, periodically down to 30 mg/day - May 2014 to May 2025

Clonazepam - up to 1 mg/day as needed - March to May 2025, quick taper off

Zoloft - 150 mg/day - May 2025 to Aug 2025 (quick cross-taper from Cymbalta)

Pristiq - 50 mg/day from Aug 2025 to mid-Oct 2025 (quick cross-taper from Zoloft); 100 mg/day from Oct 2025 to Dec 2025; back down to 50 mg/day from Dec 2025 to Jan 2026

Lyrica - 200 mg/day - Nov 2025 to Jan 2026 (quick taper off from mid-Jan to early Feb 2026 due to severe depressive symptoms)

Cymbalta - 60 mg/day - Jan - March 2026; up to 90 mg/day from March to present

 

On 5/29/2026 at 7:18 PM, Chippy said:

Do you have white tongue to go with it?

The white tongue is bacterial overgrowth caused by the chronic dry mouth these medications give you. There isn’t enough saliva to balance it.

Mine has been this way for 5 years now, you can brush it off but it just comes back.

Trying to get off sertraline since 4th April 2021.

 

1) Sertraline: 51.50 mg

2020: 50 - Oct, 100 - Dec

2021: 100 to 50 (severe withdrawal for 12 months)

2024: 60 to 57.15

2025: 57.15 to 52.12

2026: 23 Jan - 51.81, 20 Feb - 51.5, 26 Aug - CBD/THC oil (5/5mg) induced serotonin syndrome

2) Mirtazapine: 15mg - Nov 2020

3) Omeprazole: 10mg - 2016

Supplements: Magnesium

Other: Non-drinker, non-smoker

Diet: No caffeine, gluten free, dairy free, no added sugar, low carb diet

My old SA thread

  • Author

@SarahMc thanks for dropping by. Today it continues. Not as bad as yesterday.

The Neuro emotions are a minor symptom of mine but they do appear when I'm in a wave.

When I went cold turkey years ago, my neuroemotions where to much to bear, I had to go back on the meds.

Hang in there, it passes.

A whole bunch of psych meds starting in 2014, I am now only on Lamotrigine:

 

Current dose 6mg(1/26)->5.8(2/26)->5.6(7/26)->5.4(8/26)

9 minutes ago, Jennings said:

@SarahMc thanks for dropping by. Today it continues. Not as bad as yesterday.

The Neuro emotions are a minor symptom of mine but they do appear when I'm in a wave.

When I went cold turkey years ago, my neuroemotions where to much to bear, I had to go back on the meds.

Hang in there, it passes.

Thanks @Jennings, I’m getting by day by day. Sorry you’re still in it, hope things keep improving for you.

I’m not a medical professional and cannot offer medical advice. I am new to this journey and my thoughts are based only on my personal experience with psychiatric drugs. This is a peer site where we support each other on our taper/recovery journeys. 

Current regimen:

Cymbalta - 90 mg/day

Seroquel - 12.5 mg/day

*holding to stabilize as of Apr 2026

 

History:

Seroquel - up to 50 mg as needed for sleep (generally 6.25-12.5 mg a few times a week, though sometimes more) - 2009 (ish) to present

Cymbalta - 60 mg/day, periodically down to 30 mg/day - May 2014 to May 2025

Clonazepam - up to 1 mg/day as needed - March to May 2025, quick taper off

Zoloft - 150 mg/day - May 2025 to Aug 2025 (quick cross-taper from Cymbalta)

Pristiq - 50 mg/day from Aug 2025 to mid-Oct 2025 (quick cross-taper from Zoloft); 100 mg/day from Oct 2025 to Dec 2025; back down to 50 mg/day from Dec 2025 to Jan 2026

Lyrica - 200 mg/day - Nov 2025 to Jan 2026 (quick taper off from mid-Jan to early Feb 2026 due to severe depressive symptoms)

Cymbalta - 60 mg/day - Jan - March 2026; up to 90 mg/day from March to present

 

  • 1 month later...
  • Author

I'm back from my summer vacation and I've gone down another .2.

I am currently at 5.6 mg and I am going to go down .2 until I get to 5mg and see now I feel.

The mouth burning and stomach issues are still pretty bad but I need to keep slowly weaning.

A whole bunch of psych meds starting in 2014, I am now only on Lamotrigine:

 

Current dose 6mg(1/26)->5.8(2/26)->5.6(7/26)->5.4(8/26)

17 hours ago, Jennings said:

I'm back from my summer vacation and I've gone down another .2.

I am currently at 5.6 mg and I am going to go down .2 until I get to 5mg and see now I feel.

The mouth burning and stomach issues are still pretty bad but I need to keep slowly weaning.

Hope you had a nice time?

Good to know. Try to not push too hard. If your symptoms are too strong you may benefit from continuing to hold until they settle. Ultimately everyone needs to learn to read their own bodies and work out what their baseline symptoms are. Body sets the pace.

I’m not a medical professional and cannot offer medical advice. I only offer my thoughts as support. Please speak to your health practitioner about your care. This is a peer site where we support each other on our taper/recovery journeys. 

 

If you are from the UK please make sure you fill in a 'Yellow Card' report for the MHRA. It is you doing your bit to help make a difference.

Please take the time to do it today 🙂 https://yellowcard.mhra.gov.uk

For US members details here.

  • 4 weeks later...
  • Author

I got the results from my endoscopy. No issues, everything was clear.

I did it for peace of mind. The med taper must be causing the burning mouth and tongue.

I can deal with it as long as it's not killing me.

A whole bunch of psych meds starting in 2014, I am now only on Lamotrigine:

 

Current dose 6mg(1/26)->5.8(2/26)->5.6(7/26)->5.4(8/26)

    •
    • Like 2
    1 hour ago, Jennings said:

    I got the results from my endoscopy. No issues, everything was clear.

    I did it for peace of mind. The med taper must be causing the burning mouth and tongue.

    I can deal with it as long as it's not killing me.

    Glad to hear it @Jennings 😊

    I’m not a medical professional and cannot offer medical advice. I am new to this journey and my thoughts are based only on my personal experience with psychiatric drugs. This is a peer site where we support each other on our taper/recovery journeys. 

    Current regimen:

    Cymbalta - 90 mg/day

    Seroquel - 12.5 mg/day

    *holding to stabilize as of Apr 2026

     

    History:

    Seroquel - up to 50 mg as needed for sleep (generally 6.25-12.5 mg a few times a week, though sometimes more) - 2009 (ish) to present

    Cymbalta - 60 mg/day, periodically down to 30 mg/day - May 2014 to May 2025

    Clonazepam - up to 1 mg/day as needed - March to May 2025, quick taper off

    Zoloft - 150 mg/day - May 2025 to Aug 2025 (quick cross-taper from Cymbalta)

    Pristiq - 50 mg/day from Aug 2025 to mid-Oct 2025 (quick cross-taper from Zoloft); 100 mg/day from Oct 2025 to Dec 2025; back down to 50 mg/day from Dec 2025 to Jan 2026

    Lyrica - 200 mg/day - Nov 2025 to Jan 2026 (quick taper off from mid-Jan to early Feb 2026 due to severe depressive symptoms)

    Cymbalta - 60 mg/day - Jan - March 2026; up to 90 mg/day from March to present

     

    18 hours ago, Jennings said:

    I got the results from my endoscopy. No issues, everything was clear.

    I did it for peace of mind. The med taper must be causing the burning mouth and tongue.

    I can deal with it as long as it's not killing me.

    Great to hear, always worth getting checked out to be safe

    I’m not a medical professional and cannot offer medical advice. I only offer my thoughts as support. Please speak to your health practitioner about your care. This is a peer site where we support each other on our taper/recovery journeys. 

     

    If you are from the UK please make sure you fill in a 'Yellow Card' report for the MHRA. It is you doing your bit to help make a difference.

    Please take the time to do it today 🙂 https://yellowcard.mhra.gov.uk

    For US members details here.

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