Ah thank you @SarahMc 🌟 Going to try an hold onto it, I'm really grateful for the things I've been able to do lately.

Phew I just filled out the forms for my disability claim, only took me like 5 days 😅 Such a challenge with the brain fog. I have to remember it won't always be like this.

Edited August 20Aug 20 by Amy B

53 minutes ago, Amy B said:

Phew I just filled out the forms for my disability claim, only took me like 5 days 😅 Such a challenge with the brain fog. I have to remember it won't always be like this.

No it won’t always be like this. Glad you’re giving yourself the space to heal though 🙏.

Over the past 24 hours I've either come down with a stomach bug or food poisoning- I'm not too sure! I have lost a lot of fluids, my family are suggesting I have an electrolyte sachet tomorrow. I hope this will be ok and be tolerated. I want to research them but I'm just so dizzy

Take care everyone!

Edited September 24Sep 24 by Amy B

1 hour ago, Amy B said:

Over the past 24 hours I've either come down with a stomach bug or food poisoning- I'm not too sure! I have lost a lot of fluids, my family are suggesting I have an electrolyte sachet tomorrow. I hope this will be ok and be tolerated. I want to research them but I'm just so dizzy

Sorry to hear you're sick @Amy B! I haven't seen too much about artificial electrolytes being too risky, but as with anything else it's probably best if you're able to get them from natural sources (I understand this might be difficult with a stomach bug!). Apparently coconut water is a good source of electrolytes like potassium and sodium, or this blog suggests a smoothie with electrolyte-rich ingredients: https://cleanfoodcrush.com/what-are-electrolytes-and-where-do-you-get-them/

Feel better soon 🙏

16 hours ago, Amy B said:

Over the past 24 hours I've either come down with a stomach bug or food poisoning- I'm not too sure! I have lost a lot of fluids, my family are suggesting I have an electrolyte sachet tomorrow. I hope this will be ok and be tolerated. I want to research them but I'm just so dizzy

Take care everyone!

Hey Amy I am sorry to hear, I hope this passes soon for you. x

@SarahMc Thanks so much & for the link! I didn't know that about coconut water, I think I'm going to go between them.

Thanks @Chippy! things have settled today, it must have been a 24 hour thing!

On 9/24/2026 at 4:24 PM, Amy B said:

Over the past 24 hours I've either come down with a stomach bug or food poisoning- I'm not too sure! I have lost a lot of fluids, my family are suggesting I have an electrolyte sachet tomorrow. I hope this will be ok and be tolerated. I want to research them but I'm just so dizzy

Take care everyone!

I had absolutely loads of them over the course of my withdrawal, because I suffered with immense, unquenchable thirst and headaches.

I think you'll be ok. Anyone can react to anything but they're low risk, I think.

@Luke thanks, that's reassuring. Sure hope you've moved past those awful symptoms

9 hours ago, Amy B said:

@Luke thanks, that's reassuring. Sure hope you've moved past those awful symptoms

The unquenchable thirst is gone.

I hope that you keep improving out of the bug you had.

Just an update of where I'm at. I feel like I am improving very slowly overall, I'm more functional than I have been in the past and the recent stomach bug I had didn't send me into a major wave. I've been holding my dose for almost 3 months and it's been about 10 months since the last major change when I increased from 25mg to 50mg. Lately, my symptoms have been consistently a 5/6 out of 10 where as before they were a 7/8 out of 10.

I would say that the improvements are so subtle that I barely notice unless I think back to 6 months ago. Some of the things I am noticing is that I'm more selective about my clothes and appearance, not just grabbing the first thing I can see. Not so long ago I didn't even have the strength to tie my hair back.

I still experience monophobia, I can be by myself for a couple of hours at a time, but I still need that anchoring to reality. I'm also exercise intolerant, I've worked out a 20 minute walk seems to be my limit without triggering symptoms- I'll take it! My body often feels very creaky and like I've aged 100 years. Hoping all these symptoms get better in time.

Sending healing thoughts to you all 💌

Edited Wednesday at 03:59 PM3 days by Amy B

1 hour ago, Amy B said:

Just an update of where I'm at. I feel like I am improving very slowly overall, I'm more functional than I have been in the past and the recent stomach bug I had didn't send me into a major wave. I've been holding my dose for almost 3 months and it's been about 10 months since the last major change when I increased from 25mg to 50mg. Lately, my symptoms have been consistently a 5/6 out of 10 where as before they were a 7/8 out of 10.

I would say that the improvements are so subtle that I barely notice unless I think back to 6 months ago. Some of the things I am noticing is that I'm more selective about my clothes and appearance, not just grabbing the first thing I can see. Not so long ago I didn't even have the strength to tie my hair back.

Thanks for the update @Amy B. I'm so glad to hear you're noticing improvements with your hold even if they're slow. I'd say my progress in my first few months of holding was similar to yours, it felt very slow and I had to track my symptoms each day and look back over long periods to really notice anything. But the improvements were definitely still there and became more and more noticeable over time.

I definitely empathize with the appearance thing, I know it's a good day when I actually take time to put myself together.

1 hour ago, Amy B said:

Hoping all these symptoms get better in time.

I know they will 😊💜

Hey @Amy B thank you for the update. Sounds like things are certainly starting to settle down for you. That is great to hear. Please keep us upto date with how you are going forwards. xxxx

Thank you @SarahMc Your words are really grounding for me 💫

17 hours ago, SarahMc said:

. I definitely empathize with the appearance thing, I know it's a good day when I actually take time to put myself together.

Definitely. I bet I wore some very questionable outfits last year!

@Chippy Thanks so much and for the forum- makes my head feel less like a filing cabinet.

X

Edited Thursday at 11:37 AM2 days by Amy B