10/13/2026- little bad today, morning blah, small fear sensation...

Yesterday was good with few little struggles again. I was able to concentrate at work for a little bit. Then, I started to feel little brain fog...ups and down.

At night, I went to sleep around 930pm since I felt very tired. I woke up once during the night until I finally woke 5am this time.

Little Cortisol and fear sensation in the morning. Stomach feels little anxious, my ears pooping air again, muscle pintches specially on my shoulder area, eye lid twitching (I haven't gotten this in long time), and stomach feels little hot.

Overall, same old same and weaker symptoms and on and off. I feel little off today, but it is part of the healing process. one day out of time.

I hope I can concentrate at work again.

In the name of Jesus Christ, we will all heal...

@Raymond just catching up after being away a bit, just needed to take care of my CNS and as you say listening to our body. I just wanna say your story is so inspiring to me and others here. I'm nearing my 2year mark from zero and getting excited and can't wait to read your success in the future.

1 hour ago, Bernadette said:

@Raymond just catching up after being away a bit, just needed to take care of my CNS and as you say listening to our body. I just wanna say your story is so inspiring to me and others here. I'm nearing my 2year mark from zero and getting excited and can't wait to read your success in the future.

Oh thanks.....I am a long way to reach zero....

Today is more headache that's being on and off, but manageable, and muscle pain or pintches...love this journey 😆

8 hours ago, Raymond said:

10/13/2026- little bad today, morning blah, small fear sensation...

Yesterday was good with few little struggles again. I was able to concentrate at work for a little bit. Then, I started to feel little brain fog...ups and down.

At night, I went to sleep around 930pm since I felt very tired. I woke up once during the night until I finally woke 5am this time.

Little Cortisol and fear sensation in the morning. Stomach feels little anxious, my ears pooping air again, muscle pintches specially on my shoulder area, eye lid twitching (I haven't gotten this in long time), and stomach feels little hot.

Overall, same old same and weaker symptoms and on and off. I feel little off today, but it is part of the healing process. one day out of time.

I hope I can concentrate at work again.

In the name of Jesus Christ, we will all heal...

Afternoon update...

My headache and muscle stiffness neck areas starting again....let see how it goes. And like noises coming out of my ears. Crystal sounds!!!

10 hours ago, Raymond said:

@cheeky ...it's being a slow journey for me. My last taper was September 1 and I have been holding since. I hit a bad manageable wave, so I decided to hold longer and probably for the rest of the year. I feel that I'm about 80% normal and I still taper as long as I don't get major withdrawals or bad waves. Since I have been on this journey only 22 months, my cuts have not been more than 1.5% . It seems that I can manage 1.5% cut and my goal is to taper slowly first and as time passes by to increase my percentage. I read people who hold at the same dose for over three years before they started taper again. They felt a lot better and the tapering was better too. So, i believe that to feel more normal, the body takes that much time. So, I'm going slowly first, hold little longer, do small reduction. You don't have to feel 100% better. I started tapering when I felt 75% but did very small reductions of .29%. then, I just listen to my body. I don't reduce if I get a wave with fear sensation, or sleep gets bad. This is when I hold little longer.

I'm only 22 months journey and I have been doing well so far, but I still struggle with symptoms. However, I have also seeing positive improvement too.

I will suggest that pay attention to the symptoms that are more persistence and bother you the most. Mine is fear, so if it comes, I just hold my tapering. I can handle everything else..

There is this guy, Chris Paige, he hold 3 years and and half where he felt normal again before he slowly taper. He got two medications out and still another one to go, but he is able to enjoy life too. This is the route I'm trying to go. So small reductions at first, hold when ever possible, continue small reductions, and live....

@Raymond thank you so much for such a detailed response it really helps me try to work out what to do with my tapper

10/14/2026- 22 months journey continues with ups and downs.

Yesterday biggest problem was my headache. It wasn't on my left side. It was more on the back of head and neck. It's started around 2pm. It was on and off, but by 6pm, it was gone. Muscle stiffness on my neck too.

I went to sleep at 1030pm as usually. Woke up around 430am and felt back to sleep until like 615am. I continue falling asleep after waking up at 5am. This is something that I started experiencing at month 21. Somedays, I am hable to sleep without waking up, but other days, I just wake up few times.

Another change despite the issues, yesterday, I started to feel like I want to do baths instead of showers. Since I was a child, I live bathing and spend time there. During this journey, I lost it,but I felt the need to do it yesterday. It was nice to feel the hot water and h just lay down...

Other than that, I continue having same symptoms. I still react a little bit to few none sense issues. I still feel little fear sensation depending on the subject. My reactions to my job and work came back but a lot less intense. I haven't jumped into panic long time now, but I still have few reactions on and off, but not every day.

I also have few muscle pain in my feet when walking. I feel like my body is just weak. Somedays are better than others. My desire to eat sweets came back, but I'm watching for it. Also, feeling constantly to eat came back. It seems less intense, but I'm always striving to constantly eat something. I have to watch out because I did gain few pounds. I hope this goes back to normal eventually.

Burning sensation is being gone for weeks now. once in a while, I might just feel hot.

Anxiety is a lot weaker and it's not every day.

Psychological issues gone now. I might get few mild symptoms once in a while.

The main symptoms these past weeks are more physical with the muscle stiffness, pain, etc and the headache that's being on and off. Lack of concentration on and off, struggles to focus on and off, etc..

Mornings continues to be blah and on and off. Good thing is that I somehow have energy and positive thoughts....

Overall, few more months down the road, I will feel a lot better, I hope. At month 21, I had a wave, but I also improved in few areas.

Remember, this process is one step forward and three step backwards.

Time and patience are the keys....

I continue holding this month and probably until the end of the year. I want to allow my body to improve more. Let see if I keep my promises.

In the name of Jesus, we will all heal..

10/15/2026- ups and downs continues, same old same, sleep continues to be little better...

Yesterday was another good day with no headache, and the same old symptoms on and off.

I can tell you that my sleep is being better since months 21. I still wake up due to my alarm. I have slept through most of the time without waking up few times during the night. This is a plus for me...

I still experience the morning blah or anxiousness, but not every day. My afternoons are a lot better as usual.

My left side headache gone, but now, when it comes usually between 2pm to 5pm, it's now on the back of head and knock area.

Main symptoms: headache, muscle pain or pintches mainly neck and shoulders, lack of concentration, little anxiousness, little mood swings, tinnitus, desire to eat is being on and off and shorter waves, feeling dumb once in a while, enjoyment without joy on and off, comprehension or understanding on and off, etc ...

I still have those symptoms but are weaker and not every day... I'm still being tortured 😂 but it's becoming a pleasure by now.... 😂 Crazy...

Currently, I'm feeling little anxious, but it's ok...

Keep moving forward and it's Jesus Christ, we will heal...

12 hours ago, Raymond said:

10/15/2026- ups and downs continues, same old same, sleep continues to be little better...

Yesterday was another good day with no headache, and the same old symptoms on and off.

I can tell you that my sleep is being better since months 21. I still wake up due to my alarm. I have slept through most of the time without waking up few times during the night. This is a plus for me...

I still experience the morning blah or anxiousness, but not every day. My afternoons are a lot better as usual.

My left side headache gone, but now, when it comes usually between 2pm to 5pm, it's now on the back of head and knock area.

Main symptoms: headache, muscle pain or pintches mainly neck and shoulders, lack of concentration, little anxiousness, little mood swings, tinnitus, desire to eat is being on and off and shorter waves, feeling dumb once in a while, enjoyment without joy on and off, comprehension or understanding on and off, etc ...

I still have those symptoms but are weaker and not every day... I'm still being tortured 😂 but it's becoming a pleasure by now.... 😂 Crazy...

Currently, I'm feeling little anxious, but it's ok...

Keep moving forward and it's Jesus Christ, we will heal...

I continue to be stable and drinking afternoon coffee... holding few more weeks and I probably cut again..

No major issues and same old same in the part few weeks...