14 minutes ago, LostinCanada said:

It's because stopping a PPI causes rebound reflux...that is why it too has to be tapered and while slowly tapering adding something like DGL, marshmallow root, etc works to increase mucus to coat the lining of the esophagus, stomach, etc.

The problem is that I cannot taper. My PPI is literally a 10mg pill with a protective coat/film that cannot be cut. So best I can do is skipping days/hours or enter the rabbit hole of spending money collecting supplements that might not agree with me either because of gastritis or withdrawal. Already tried like 10 different things and all ended in the trash. Magnesium of all kinds, B12 supplements, herbal/natural remedies, iberogast, OTC antiacids like gaviscon or almax...

Maybe once I get out of this wave I try things again. First I'd like to process more foods, as I've given up most of my diet. I removed red meats, fatty fish, nuts, most fruits except bananas, tomatoes, milk and yoghurts... Eating super lean and nice, but vitamins like B12, folic acid and other took a hit. I know PPI plays a part, but so does not eating a varied diet. At this point i'm not sure if it's the gastritis or withdrawal causing the symptoms. I remember reintroducing yoghurts and a week or two later starting the wave I'm in now with weird abdominal pain/feelings. For now I reintroduced 50g of red meat occasionally, 100-200g of salmon or some sardines and it seems okay. Would like to reintroduce fruits too like apples as they gave me pain, nausea and nighttime reflux.

Edited May 19May 19 by ALonelySoul12
wanted to add more stuff

3 hours ago, LostinCanada said:

I've never seen an AD that could be made into liquid, that wasn't stable for less than 24 hours. Just make sure you put it in a little cooler. You don't want it to freeze or get hot.

Thanks @LostinCanada i keep my lex bottle in the fridge anyway so it stays at a constant temperature

3 hours ago, Chippy said:

Is this a diy liquid or a diluted manufactured liquid?

Assuming this is diy liquid I would suggest putting it in a small cool bag/picnic bag with an ice pack or two. It won’t freeze it just keep it cool.

@Chippy It’s a diluted manufactured liquid. It’s 1mg per ml. I’m on 1.5mg so it involves me making up my dose with a syringe

1 minute ago, Johan1233 said:

@Chippy It’s a diluted manufactured liquid. It’s 1mg per ml. I’m on 1.5mg so it involves me making up my dose with a syringe

Check what the label says but most say to keep at room temperature I think, even diluted. The label should say how long to keep the solution once diluted too.

41 minutes ago, Chippy said:

Check what the label says but most say to keep at room temperature I think, even diluted. The label should say how long to keep the solution once diluted too.

Thanks @Chippy It states not to store above 25 degrees Celsius. I did email the manufacture and they confirmed it can be stored in the fridge. Summer is coming up and I just worry that it will get too hot

8 hours ago, Johan1233 said:

Hi @LostinCanada @Chippy . I don’t know if either know or know where I can find out some information on liquid lexapro(ciprilex) context- I work away some weekends on events. Normally arriving 12 lunchtime then finishing 12 midnight. I normally take my medication @7:30pm. It involves a syringe and precise measring(obviously). My question is: how long, once mixed, will it remain ‘good’. It’s obviously not ideal making up my dose in my van while working. So ideally I would mix the liquid into a container at home then ingest while at work. Thanks a lot

Hi @Johan1233 i use LEXAPRO brand 20mg/ml and use 0.1ml + 0.9ml of water to yield a 2mg/ml solution. I’m not too fussy about dosing times as it has a long half life. So for me the timing is shortly after I wake up. If taking it to work with you I’d store it in an amber bottle to protect from light, and I’d store it in the polystyrene equivalent of a cool box with a freezer brick or ice pack

8 hours ago, Johan1233 said:

Thanks @Chippy It states not to store above 25 degrees Celsius. I did email the manufacture and they confirmed it can be stored in the fridge. Summer is coming up and I just worry that it will get too hot

Yeah then a little cool bag should be great. You can get these dark glass pots for makeup in sets from Amazon perfect to put the liquid in.

I store mine in the fridge year round and use the previously mentioned polystyrene box with ice brick/cold pack if travelling anywhere

15 hours ago, ALonelySoul12 said:

The problem is that I cannot taper. My PPI is literally a 10mg pill with a protective coat/film that cannot be cut. So best I can do is skipping days/hours or enter the rabbit hole of spending money collecting supplements that might not agree with me either because of gastritis or withdrawal.

Are there any alternative versions of this drug that you could explore a prescription for to aid in tapering it?

Hi @Chippy @LostinCanada . So I wish I was writing to say I’ve recovered…. I’ve been gradually getting better these last few months. My interest in things has been slowly improving. I’ve been going on bike rides, listening to my music and even started back up in the gym. I’m back in a horrible wave, like I’ve gone back 3 months which started Saturday night. The only explanation I have is I had a leg workout in the gym the following Friday evening, maybe it was too much? I wasn’t lifting heavy by any means but maybe the intensity was too much. I can’t shake that it’s undone my recovery, I’m in bits

2 hours ago, Johan1233 said:

I’m back in a horrible wave, like I’ve gone back 3 months which started Saturday night. The only explanation I have is I had a leg workout in the gym the following Friday evening, maybe it was too much? I wasn’t lifting heavy by any means but maybe the intensity was too much. I can’t shake that it’s undone my recovery, I’m in bits

Hi @Johan1233 I'm sorry you're back in a wave. Unfortunately these things just happen sometimes. I wouldn't blame your leg workout necessarily, especially if you've been in the gym regularly lately and it hasn't set you back previously. Often waves are just random and unpredictable -- believe me, I say this from experience! But you have NOT undone your recovery, no matter how horrible this may feel. You will get through this wave, and you will continue to heal. You're on the right track 💜.

44 minutes ago, SarahMc said:

Hi @Johan1233 I'm sorry you're back in a wave. Unfortunately these things just happen sometimes. I wouldn't blame your leg workout necessarily, especially if you've been in the gym regularly lately and it hasn't set you back previously. Often waves are just random and unpredictable -- believe me, I say this from experience! But you have NOT undone your recovery, no matter how horrible this may feel. You will get through this wave, and you will continue to heal. You're on the right track 💜.

Hi @SarahMc thank you for your message it has helped me. It’s stuck in my head that recovery is linear and I should be getting better with time, I should know by now that’s not the case. I also try to find reasons behind every wave

3 hours ago, Johan1233 said:

back in a horrible wave,

Please remember that waves do mean healing. I know it feels horrible and that you are going backwards but that isn't the case. Even if the work at the gym triggered it, I think it just meant your body needed to do some more calibrating.

Are you still on 1.5 mg of lexapro?

Hopefully this wave will be a quick one.

❤️🙏

Edited August 26Aug 26 by LostinCanada

34 minutes ago, LostinCanada said:

Please remember that waves do mean healing. I know it feels horrible and that you are going backwards but that isn't the case. Even if the work at the gym triggered it, I think it just meant your body needed to do some more calibrating.

Are you still on 1.5 mg of lexapro?

Hopefully this wave will be a quick one.

❤️🙏

Thank you @LostinCanada . It’s just a lot of symptoms at once which I haven’t had in a while. I also think that my medication has gone bad again which put me in this mess the second time round. Still on 1.5mg lexapro and 10mg omeprazole so no dose changes

4 hours ago, Johan1233 said:

Hi @SarahMc thank you for your message it has helped me. It’s stuck in my head that recovery is linear and I should be getting better with time, I should know by now that’s not the case. I also try to find reasons behind every wave

That's what really messes us up. We're so used to healing from colds, infections, viruses in a linear pattern. It is so unusual to heal in this pattern. But we do and we are healing. Best to look at over all trajectory over months 😊 believe me i know. I had a near 3 week window and been bad with a wave for a few days now. It'll pass again, my friend 😊❤️

1 hour ago, cherrysquid said:

That's what really messes us up. We're so used to healing from colds, infections, viruses in a linear pattern. It is so unusual to heal in this pattern. But we do and we are healing. Best to look at over all trajectory over months 😊 believe me i know. I had a near 3 week window and been bad with a wave for a few days now. It'll pass again, my friend 😊❤️

Thanks a lot @cherrysquid. Hope your wave passes soon❤️. I have a feeling it’s going to be a tough night but I’ll get through it

17 minutes ago, Johan1233 said:

Thanks a lot @cherrysquid. Hope your wave passes soon❤️. I have a feeling it’s going to be a tough night but I’ll get through it

@cherrysquid hello from the UK as well

37 minutes ago, Johan1233 said:

Thanks a lot @cherrysquid. Hope your wave passes soon❤️. I have a feeling it’s going to be a tough night but I’ll get through it

It will. And if you know youre going to have a rough night buckle down. I got some cosy colouring books for nights like those 😂

I hope it passes for you too. And hello from Sunny Sunderland lol

6 hours ago, cherrysquid said:

It will. And if you know youre going to have a rough night buckle down. I got some cosy colouring books for nights like those 😂

I hope it passes for you too. And hello from Sunny Sunderland lol

Sounds like you’ve got it nailed down🙂

Greetings from Sunny Swindon!

Symptoms have definitely been slowly building since Saturday evening. I dunno, this wave just feels different somehow.

Rough night, a few cortisol spikes throughout the night which hasn’t happened in a while. Historically my waves rarely last a few days(3-4) and windows tend to be 1-2 days

I Checked my lexapro bottle and I don’t suspect anything off there. Same cloudy color when mixed with water and the smell of ethanol still present. Same brand and dose of omeprazole

Just rubbish

21 hours ago, Johan1233 said:

Hi @Chippy @LostinCanada . So I wish I was writing to say I’ve recovered…. I’ve been gradually getting better these last few months. My interest in things has been slowly improving. I’ve been going on bike rides, listening to my music and even started back up in the gym. I’m back in a horrible wave, like I’ve gone back 3 months which started Saturday night. The only explanation I have is I had a leg workout in the gym the following Friday evening, maybe it was too much? I wasn’t lifting heavy by any means but maybe the intensity was too much. I can’t shake that it’s undone my recovery, I’m in bits

Sorry to read @Johan1233, so pleased to hear of your better months since we last spoke, some really good news, unfortunately as you know this journey is not linear, it might be you have done nothing at all and it is just the process playing out for you. Cruel I know, don't kick yourself, you are doing nothing wrong.

4 hours ago, Johan1233 said:

Sounds like you’ve got it nailed down🙂

Greetings from Sunny Swindon!

I come from Reading originally, had my stag in Swindon (not that I remember lol) and used to go to the bike superstore/George whites all the time. I don't miss the south mind!

18 minutes ago, Chippy said:

Sorry to read @Johan1233, so pleased to hear of your better months since we last spoke, some really good news, unfortunately as you know this journey is not linear, it might be you have done nothing at all and it is just the process playing out for you. Cruel I know, don't kick yourself, you are doing nothing wrong.

Thanks @Chippy! Long time no speak, I hope you’re doing ok.

15 minutes ago, Chippy said:

I come from Reading originally, had my stag in Swindon (not that I remember lol) and used to go to the bike superstore/George whites all the time. I don't miss the south mind!

My sister lives in reading, small world ey! Swindon is interesting to say the least ha!

18 minutes ago, Chippy said:

I come from Reading originally, had my stag in Swindon (not that I remember lol) and used to go to the bike superstore/George whites all the time. I don't miss the south mind!

I can NOT imagine you drunk and being tied to a lamppost or whatever it is men do on their stags 😂

43 minutes ago, Johan1233 said:

Symptoms have definitely been slowly building since Saturday evening. I dunno, this wave just feels different somehow.

Rough night, a few cortisol spikes throughout the night which hasn’t happened in a while. Historically my waves rarely last a few days(3-4) and windows tend to be 1-2 days

I Checked my lexapro bottle and I don’t suspect anything off there. Same cloudy color when mixed with water and the smell of ethanol still present. Same brand and dose of omeprazole

Just rubbish

Waves changing is weirdly a good thing means healing is progressing. Or so I have read. I guess that makes sense because it shows change, and the change we want is stabilisation lol