2 hours ago, SarahMc said:

Have you ever talked to Dr. Horowitz? It might be worth setting up an appointment with him if you're worried that holding isn't helping you.

Hi Sara, I’ve spoken to Dr Horowitz twice .. How’s your hold going?

34 minutes ago, SpiroC said:

Hi Sara, I’ve spoken to Dr Horowitz twice .. How’s your hold going?

Ok great. And he said to hold is that right?

My hold's going alright, I'm definitely not stable or anything but I do feel like my average has improved if I look back to where I started. My symptoms are still pretty unpredictable and all over the place, but I'm decently functional so I'm lucky in that way.

How are you doing?

16 minutes ago, SarahMc said:

Ok great. And he said to hold is that right?

Yes he said for now hold !

17 minutes ago, SarahMc said:

My hold's going alright, I'm definitely not stable or anything but I do feel like my average has improved if I look back to where I started. My symptoms are still pretty unpredictable and all over the place, but I'm decently functional so I'm lucky in that way.

Really happy for you Sarah!

17 minutes ago, SarahMc said:

How are you doing?

No not great :/

3 hours ago, SarahMc said:

months. I'm not sure to what extent that would apply to a more complicated situation like you or me since we've been cycled through a bunch of different drugs and our nervous systems are very unstable.

The reason I brought his up is because he said he has seen patients hold for two years. With little to no reprieve

@Luke @Chippy what are your thoughts on that?

3 hours ago, SpiroC said:

Really happy for you Sarah!

Thanks buddy 😊

3 hours ago, SpiroC said:

No not great :/

Really sorry to hear this.

3 hours ago, SpiroC said:

The reason I brought his up is because he said he has seen patients hold for two years. With little to no reprieve

This was kind of a throwaway sentence at the beginning of the video without much context, so I wouldn't put too much stock in it. I would be inclined to trust Dr. Horowitz's assessment and try to just keep taking things day by day and not focus too much on timelines. I'm sorry this is still so hard. It won't be forever.

14 hours ago, SpiroC said:

@Luke @Chippy what are your thoughts on that?

I just very quickly skipped through the video and I think the bit you are referring too is about when people RI the drug and worsen rather than improve and then just hold at that dose for a long time hopeing to stablise. I think he is right in as much as if a RI doesn't help at all and you think it may be irritating to your nervous system, there probably does become a point where a careful taper off is worth considering, bit like in poop out for example. It's why I am always nervous when people RI too high and then choose to hold, I think high dose RI can be very bad, when they come here I like to try to get them to reduce and get that drug lower as quickly as possible if they have not been back on it too long.

Not sure this applies to you?