So far it's better today.

-_- the pain came back in the last few hours. I am once again going to the toilet multiple times every hour because of the pain. Impossible to sleep.

It is all over for me? Am I NEVER going to recover from this at all? It's been over 6 months. If it keeps happening doesn't that prove I am NOT recovering and I am just getting worse and getting more brain damage? It's not like I have an infection because I did so many tests at the start of all this and they all came back clear.

I can't stop worrying this will never get better. I keep having panic attacks in the night because of this.

I am currently going to the toilet every 5 minutes because of the pain even though there's nothing there.

It seems like it's confirmed my life is over and I was foolish for getting my hopes up that one day i would get better. It's probably going to keep getting worse.

Edited April 5Apr 5 by EDP6893

6 hours ago, EDP6893 said:

It is all over for me? Am I NEVER going to recover from this at all? It's been over 6 months.

You are healing and slowly recovering, it just can't take longer than we want it to.

There are certain people who have a wave/worsening in 6 months but it's all temporary.

withdrawal average on these forums is around 3 years, obviously it does get better with time, you are only 6 months in,I believe you can still live in withdrawal and do things as you can.

we all believed our life was over, it's the grief stage in the path to acceptance, after a certain amount of time you realize it's not the end of the world.

I believe in you ❤️

6 hours ago, EDP6893 said:

-_- the pain came back in the last few hours. I am once again going to the toilet multiple times every hour because of the pain. Impossible to sleep.

It is all over for me? Am I NEVER going to recover from this at all? It's been over 6 months. If it keeps happening doesn't that prove I am NOT recovering and I am just getting worse and getting more brain damage? It's not like I have an infection because I did so many tests at the start of all this and they all came back clear.

I can't stop worrying this will never get better. I keep having panic attacks in the night because of this.

I am currently going to the toilet every 5 minutes because of the pain even though there's nothing there.

It seems like it's confirmed my life is over and I was foolish for getting my hopes up that one day i would get better. It's probably going to keep getting worse.

Im so sorry for everthing you are going through. 

 

I think you are still experiencing WD from switching amitriptyline and Effexor to Fluoxetine. It was likley a big hit to your system. It would appear you then dropped your Fluoxetine dose from 20mg to 10mg in January 25, this was a big drop. Fluoxetines half life means WD is often delayed so Im guessing what you have been feeling the last 6 months is your body trying to find balance again, ontop of dealing with the switch.

 

That was a lot to go through, and you are very brave dealing with all this, and then you had to move and have all that stress too. Can't have been easy. You did great!

 

It can take a really long time for things to settle down, BUT that doesn't mean that it won't. It just always feels like it when in the middle midst of it all.

 

We are all here for you. Time is your friend. @Lighty made some good points. Coping skills are so important whilst in the throws of WD. Acceptance and distraction so key in surviving this awful journey we are all on. But survive it we will. Together.

 

Chippy

6 hours ago, EDP6893 said:

-_- the pain came back in the last few hours. I am once again going to the toilet multiple times every hour because of the pain. Impossible to sleep.

It is all over for me? Am I NEVER going to recover from this at all? It's been over 6 months. If it keeps happening doesn't that prove I am NOT recovering and I am just getting worse and getting more brain damage? It's not like I have an infection because I did so many tests at the start of all this and they all came back clear.

I can't stop worrying this will never get better. I keep having panic attacks in the night because of this.

I am currently going to the toilet every 5 minutes because of the pain even though there's nothing there.

It seems like it's confirmed my life is over and I was foolish for getting my hopes up that one day i would get better. It's probably going to keep getting worse.

Nothing is over for you @EDP6893

Your system regulates itself through all kinds of symptoms and this is one of them.

I suffered badly from this for months straight, awful digestion, endless runs to the toilet, stomach aches and what not and just when I thought I wouldn't get out of it it started to fade, I've been in a relatively good digestive state for a few days now so don't lose hope, it can change at any moment, your system is working hard and it will find balance eventually.

Hang in there, it will get easier.

@EDP6893 Could you summarise when you started and stopped the Daridorexant?

 

I hope that things settle down for you.

1 hour ago, Luke said:

@EDP6893 Could you summarise when you started and stopped the Daridorexant?

 

I hope that things settle down for you.

Sure I'll add it to my signature.

3 hours ago, Lighty said:

You are healing and slowly recovering, it just can't take longer than we want it to.

There are certain people who have a wave/worsening in 6 months but it's all temporary.

withdrawal average on these forums is around 3 years, obviously it does get better with time, you are only 6 months in,I believe you can still live in withdrawal and do things as you can.

we all believed our life was over, it's the grief stage in the path to acceptance, after a certain amount of time you realize it's not the end of the world.

I believe in you ❤️

To clarify I am over a year in, it's just this genital burning pains started 6 months ago.

2 hours ago, Chippy said:

Im so sorry for everthing you are going through. 

 

I think you are still experiencing WD from switching amitriptyline and Effexor to Fluoxetine. It was likley a big hit to your system. It would appear you then dropped your Fluoxetine dose from 20mg to 10mg in January 25, this was a big drop. Fluoxetines half life means WD is often delayed so Im guessing what you have been feeling the last 6 months is your body trying to find balance again, ontop of dealing with the switch.

 

That was a lot to go through, and you are very brave dealing with all this, and then you had to move and have all that stress too. Can't have been easy. You did great!

 

It can take a really long time for things to settle down, BUT that doesn't mean that it won't. It just always feels like it when in the middle midst of it all.

 

We are all here for you. Time is your friend. @Lighty made some good points. Coping skills are so important whilst in the throws of WD. Acceptance and distraction so key in surviving this awful journey we are all on. But survive it we will. Together.

 

Chippy

But shouldn't withdrawal get better overtime? Doesn't it getting worse again prove I am not getting better?

2 hours ago, Fullhealing said:

Nothing is over for you @EDP6893

Your system regulates itself through all kinds of symptoms and this is one of them.

I suffered badly from this for months straight, awful digestion, endless runs to the toilet, stomach aches and what not and just when I thought I wouldn't get out of it it started to fade, I've been in a relatively good digestive state for a few days now so don't lose hope, it can change at any moment, your system is working hard and it will find balance eventually.

Hang in there, it will get easier.

It feels like this extreme pain is going to last over a year easily by itself, let alone the protracted withdrawal in general taking far longer.

Also, I got zero sleep last night because of the pain. My eyes sting so much I can barely keep them open.

3 minutes ago, EDP6893 said:

To clarify I am over a year in, it's just this genital burning pains started 6 months ago.

Oh i see, either way you are gonna improve.

 

1 minute ago, EDP6893 said:

But shouldn't withdrawal get better overtime? Doesn't it getting worse again prove I am not getting better?

Withdrawal isn't a linear thing, you can get easier day and worse days and it flactuates, new symptoms can come even come 1 year into withdrawal.

The thing is tho, the longer you go through it, your average of the good and bad days become better, yeah you can have bad months with a wave and then a month that is a window that is pretty good, but the overall becomes better.

1 minute ago, EDP6893 said:

But shouldn't withdrawal get better overtime? Doesn't it getting worse again prove I am not getting better?

No not at all. Fluoxetines half life is effectively many months. (8/9) and I think caused you delayed worsening/wd. Everyone heals. It’s what the body is designed to do. You have other factors that I’m sure haven’t helped too. Hang in there you’ll stabile eventually. 

Just now, Lighty said:

Oh i see, either way you are gonna improve.

 

Withdrawal isn't a linear thing, you can get easier day and worse days and it flactuates, new symptoms can come even come 1 year into withdrawal.

The thing is tho, the longer you go through it, your average of the good and bad days become better, yeah you can have bad months with a wave and then a month that is a window that is pretty good, but the overall becomes better.

I am terrified this extra pain is not going to be temporary and, just like this extreme pain came out of nowhere 6 months ago and hasn't gone away (very few days with no pain), I am also worried this worse pain will be basically permanent.

2 minutes ago, EDP6893 said:

My eyes sting so much I can barely keep them open.

Does sound like a histamine issue. 

Just now, Chippy said:

Does sound like a histamine issue. 

I read online ages ago that prozac can make your eyes drier, and I have been getting the same vision issues on it as I had with effexor. And the sleepless nights make it worse.

2 minutes ago, Chippy said:

No not at all. Fluoxetines half life is effectively many months. (8/9) and I think caused you delayed worsening/wd. Everyone heals. It’s what the body is designed to do. You have other factors that I’m sure haven’t helped too. Hang in there you’ll stabile eventually. 

It just doesn't make any sense that I am over a year into this protracted withdrawal and it seems like I am just getting worse and everything is falling apart for me.

1 minute ago, EDP6893 said:

I am terrified this extra pain is not going to be temporary and, just like this extreme pain came out of nowhere 6 months ago and hasn't gone away

it's all your withdrawal speaking, nobody knows how long your symptoms will be, but in 99.9% of cases it goes away eventually, the only thing you have to do is accept, accept that you are sick, it's okay to not feel well, you are gonna do your best, and it's all temporary, and `just symptoms`.

You will be good, you have to come to that realization yourself, I can do my best to explain to you, but you will need to comprehend it yourself, that you will be fine, and you will heal, it's just the withdrawal talking about thinks being forever.

Just now, EDP6893 said:

the sleepless nights make it worse.

Oh for sure. Lack of sleep makes everything worse! We all empathise with this. 🥴

Just now, EDP6893 said:

It just doesn't make any sense that I am over a year into this protracted withdrawal and it seems like I am just getting worse and everything is falling apart for me.

I’d consider the worsening you felt, oct nov right? almost the start of the wd in some ways. It’s like your hold started then. 

1 minute ago, Lighty said:

it's all your withdrawal speaking, nobody knows how long your symptoms will be, but in 99.9% of cases it goes away eventually, the only thing you have to do is accept, accept that you are sick, it's okay to not feel well, you are gonna do your best, and it's all temporary, and `just symptoms`.

You will be good, you have to come to that realization yourself, I can do my best to explain to you, but you will need to comprehend it yourself, that you will be fine, and you will heal, it's just the withdrawal talking about thinks being forever.

My brain keeps bullying me to go outside and do things, but I feel too unwell to do anything but lay in bed all day.

Just now, Chippy said:

I’d consider the worsening you felt, oct nov right? almost the start of the wd in some ways. It’s like your hold started then. 

Because it was going to happen eventually and the prozac just delayed its withdrawal by many months? But either way it feels impossible to manage being forced to go to the toilet constantly. It's taken control of my life.

Just now, EDP6893 said:

My brain keeps bullying me to go outside and do things, but I feel too unwell to do anything but lay in bed all day.

You shouldn't bully yourself, it's not easy but withdrawal does generate thoughts that are negative, you have to catch the thoughts and just not believe them, and accept them.

 

Going outside isn't a bad idea if you can do that, go for a walk, be in the sun, etc.

Just now, Lighty said:

You shouldn't bully yourself, it's not easy but withdrawal does generate thoughts that are negative, you have to catch the thoughts and just not believe them, and accept them.

 

Going outside isn't a bad idea if you can do that, go for a walk, be in the sun, etc.

Today I can't do it.

Just now, EDP6893 said:

Today I can't do it.

If you can't go outside today that's fine, you will go outside when you want to and can go outside.