2 hours ago, EDP6893 said:

I have also been getting some weird electric shock sensations in some of my toes or ankles occasionally. Once every day or every other day. Starting this month since the flare up began.

Very common on this journey. It's a sign your body is healing and finding it's natural stability..

Ever since taking the daridorexant I woke up at 3am two nights ago and last night I woke up at 5:30am. If this continues I think I should stop taking the daridorexant as it might be making me worse. I started taking the daridorexant 2 nights ago.

Edited April 30Apr 30 by EDP6893

8 minutes ago, EDP6893 said:

Ever since taking the daridorexant I woke up at 3am two nights ago and last night I woke up at 5:30am. If this continues I think I should stop taking the daridorexant as it might be making me worse. I started taking the daridorexant 2 nights ago.

yeah if it makes things worse, stop it.

I don't recommend taking any other pharmaceutical drug as you can from some stuff get injured even more with a fragile nervous system.

4 minutes ago, Lighty said:

yeah if it makes things worse, stop it.

I don't recommend taking any other pharmaceutical drug as you can from some stuff get injured even more with a fragile nervous system.

Yeah ok I'm gonna stop it then.

I hope I have not set back my recovery by a long time because of me stopping daridorexant. It feels much worse because of this pain.

5th day in a row now of needing to go to the toilet every 30 mins or more.

Have I given myself Post SSRI Sexual Dysfunction, or permanent nerve damage?

Edited April 30Apr 30 by EDP6893

1 minute ago, EDP6893 said:

Yeah ok I'm gonna stop it then.

I hope I have not set back my recovery by a long time because of me stopping daridorexant. It feels much worse because of this pain.

5th day in a row now of needing to go to the toilet every 30 mins or more.

stop the thought train, it's all stuff that will lead you to bad emotions and suffering, just do as needed and stop the drug ❤️

5 minutes ago, EDP6893 said:

Yeah ok I'm gonna stop it then.

I hope I have not set back my recovery by a long time because of me stopping daridorexant. It feels much worse because of this pain.

5th day in a row now of needing to go to the toilet every 30 mins or more.

Have I given myself Post SSRI Sexual Dysfunction, or permanent nerve damage?

If you think it has worsened things for you stopping it, is a good idea. Maybe the ri was too high. Maybe ri just wasn’t going to work for you.

Try not to worry. Lightys advice is sound. Make a choice that feels right and trust your body to put this right for you.

8 minutes ago, Lighty said:

stop the thought train, it's all stuff that will lead you to bad emotions and suffering, just do as needed and stop the drug ❤️

It's pretty much impossible for me not to worry all the time. When I am in so much pain I can't ignore it and it makes me stressed constantly. That's why this forum has been helpful for me. Hearing you guys' reassurance and advice is really good.

I wish I could just accept things and have my life be a blur until I was better again. But I can't do it. I have to keep going for walks occasionally. I can't just accept not leaving the house because of the pain. I have managed to go for some walks, during small periods of the + days where the pain wasn't as bad.

5 minutes ago, Chippy said:

If you think it has worsened things for you stopping it, is a good idea. Maybe the ri was too high. Maybe ri just wasn’t going to work for you.

Try not to worry. Lightys advice is sound. Make a choice that feels right and trust your body to put this right for you.

I hope my sleep goes back to normal soon. I am way more tired waking up at 3am instead of going to sleep at 3am and waking up at 8am.

8 minutes ago, EDP6893 said:

I hope my sleep goes back to normal soon. I am way more tired waking up at 3am instead of going to sleep at 3am and waking up at 8am.

So do you think this is the ri? Or is it just your sleep cycle is out of sync?

2 minutes ago, Chippy said:

So do you think this is the ri? Or is it just your sleep cycle is out of sync?

The RI. The timing matches perfectly. On the night I took 25mg I wake up at 3am. Then the next night I take 1/4 and wake up at 5:30am.

Just now, EDP6893 said:

The RI. The timing matches perfectly. On the night I took 25mg I wake up at 3am. Then the next night I take 1/4 and wake up at 5:30am.

Ok. Then it’s not working for you perhaps. Things can worsen at first so it is your choice if you stick it out or just stop. Things may settle down in a few days. Not having a consistent dose doesn’t help things.

1 minute ago, Chippy said:

Ok. Then it’s not working for you perhaps. Things can worsen at first so it is your choice if you stick it out or just stop. Things may settle down in a few days. Not having a consistent dose doesn’t help things.

I can't take the risk of continuing. My nervous system is too fragile.

4 minutes ago, EDP6893 said:

I can't take the risk of continuing. My nervous system is too fragile.

Then that is the right choice.

2 hours ago, EDP6893 said:

It's pretty much impossible for me not to worry all the time. When I am in so much pain I can't ignore it and it makes me stressed constantly.

It's a skill you need to develop, not an instant fix.

imagine you kept getting ups and downs for years, at some point you will learn to recognize 'oh this is just a down, it's gonna be better in a few days and it's not dangerous'.

After enough time of symptoms I realizsd things and became used to it in a way, and i surrender to symptoms when I have immense pain for instance, as I know it will pas away after a few hours and the whole wave is only a few days.

2 hours ago, EDP6893 said:

It's pretty much impossible for me not to worry all the time. When I am in so much pain I can't ignore it and it makes me stressed constantly. That's why this forum has been helpful for me. Hearing you guys' reassurance and advice is really good.

I wish I could just accept things and have my life be a blur until I was better again. But I can't do it. I have to keep going for walks occasionally. I can't just accept not leaving the house because of the pain. I have managed to go for some walks, during small periods of the + days where the pain wasn't as bad.

It's great that you have that fighting spirit and you don't give up that shows the strength and determination in you but that doesn't contradict acceptance, you just need to know where to use it correctly and the consuming worry, the more you work on acceptance, the less powerful it will be.

This is a learning process for all of us as we go along, so be gentle with yourself @EDP6893 it won't work instantly, just keep on trying.

Edited April 30Apr 30 by Fullhealing

20 hours ago, EDP6893 said:

It's pretty much impossible for me not to worry all the time. When I am in so much pain I can't ignore it and it makes me stressed constantly. That's why this forum has been helpful for me. Hearing you guys' reassurance and advice is really good.

I wish I could just accept things and have my life be a blur until I was better again. But I can't do it. I have to keep going for walks occasionally. I can't just accept not leaving the house because of the pain. I have managed to go for some walks, during small periods of the + days where the pain wasn't as bad.

Dealing with constant/regular/chronic pain is very difficult, even for someone who has nothing else going on like withdrawal/psychiatric drug harms. It wears you down, and it is very difficult not to let it creep into everything. You're right, it is very stressful.

You're doing really well getting outdoors when you can, I'm sure that's been quite difficult.

I'm also glad that you find this place supportive.

4 minutes ago, Luke said:

Dealing with constant/regular/chronic pain is very difficult, even for someone who has nothing else going on like withdrawal/psychiatric drug harms. It wears you down, and it is very difficult not to let it creep into everything. You're right, it is very stressful.

You're doing really well getting outdoors when you can, I'm sure that's been quite difficult.

I'm also glad that you find this place supportive.

I'm grateful for you guys support and you making the new forum. It's just as good as surviving antidepressants was. Can't believe Altostrata shut it down for nothing.

17 hours ago, Fullhealing said:

It's great that you have that fighting spirit and you don't give up that shows the strength and determination in you but that doesn't contradict acceptance, you just need to know where to use it correctly and the consuming worry, the more you work on acceptance, the less powerful it will be.

This is a learning process for all of us as we go along, so be gentle with yourself @EDP6893 it won't work instantly, just keep on trying.

Thanks. I had a non + day yesterday, and I woke up at 6am last night which was good. Hopefully this means the waking up in the night issue will go soon.

17 hours ago, Lighty said:

It's a skill you need to develop, not an instant fix.

imagine you kept getting ups and downs for years, at some point you will learn to recognize 'oh this is just a down, it's gonna be better in a few days and it's not dangerous'.

After enough time of symptoms I realizsd things and became used to it in a way, and i surrender to symptoms when I have immense pain for instance, as I know it will pas away after a few hours and the whole wave is only a few days.

So if it was a really hot day, sunny, everyone else was out...but you couldn't go for a walk due to withdrawal pains, how would you accept that?

1 hour ago, EDP6893 said:

So if it was a really hot day, sunny, everyone else was out...but you couldn't go for a walk due to withdrawal pains, how would you accept that?

I just accept it and do what I can do, it's not that complicated, you just have to accept even when it's not easy, and not overthink.

I believe practicing meditation helps with developing the mindset.

Imagine you wanted to buy something and couldn't afford it (random example).

One guy would be so annoyed and say to himself 'Oh no i can't afford this ! My life sucks so much I can't get anything nice and only cheap things, why wasnt i born rich bla bla bla'.

The other guy just accepts it and appreciates what he can buy and have and appreciates the simple things.

Who suffers in pain and who lives in peace in that situation?

Edited May 1May 1 by Lighty

1 hour ago, EDP6893 said:

Thanks. I had a non + day yesterday, and I woke up at 6am last night which was good. Hopefully this means the waking up in the night issue will go soon.

Everything will slowly balance out, it won't be linear and waves will hit in various forms but don't resist or be afraid, it's all part of the process.

Well done @EDP6893 you're coping great.

@EDP6893 with regards to acceptance its not easy I struggle with it in a bad wave ,but sometimes I look at it rather than try and accept it just don't have any expectations, if you don't expect a day to go a certain way and it doesn't you won't be disappointed..a lot of the time it's our expectations of our journey ,just take each day as it comes and don't expect too much .

Had 3 good days in a row (it still hurts a lot but no needing to go to the toilet every hour or more). I wonder if I'll reach a new mile stone with the amount of good days or if it will suddenly go back again.

That's a good sign. I hope you have more.