27 minutes ago, EDP6893 said:

I don't get your reasoning. You say other drugs are the same as daridorexant because it's psycho active (aka it's just as bad as cold turkey-ing a drug like effexor), yet you tell me not to worry that I could've set my recover back by years? You've given me no reason not to worry other than "just don't"

I think it is prozac withdrawal, because I did stop it last year and nothing happened so whatever.

It doesn't really matter @EDP6893 as your system will know how to deal and recover from all the blows it has received but your mind will find a way to hold on to anything negative and unencouraging during wd phase, that's how it works for all of us.

Don't give it any attention and know that you will recover, period!

2 hours ago, EDP6893 said:

I had 3 good days but unfortunately today has been a bad day.

You on right track. All will come back again.

Bad day today and yesterday.

13 hours ago, EDP6893 said:

Bad day today and yesterday.

Sorry to hear @EDP6893 hope today is better.

Today is also a bad day. 3 bad days in a row after 3 good days in a row.

Nothing will ever get better. It's hopeless. I am never recovering from this.

55 minutes ago, EDP6893 said:

Today is also a bad day. 3 bad days in a row after 3 good days in a row.

Nothing will ever get better. It's hopeless. I am never recovering from this.

Sorry to hear. It is a hard journey we are on. But it isn't hopeless. One day at a time.

1 hour ago, EDP6893 said:

Bad day today and yesterdayThis things will improve aga

2 hours ago, EDP6893 said:

Today is also a bad day. 3 bad days in a row after 3 good days in a row.

Nothing will ever get better. It's hopeless. I am never recovering from this.

You will recover again. It's a long journey that we don't want, but it's what the body needs to recover. You are doing great....keep moving forward...

@EDP6893 Hey EDP, I’m really glad you keep showing up here and sharing what you’re going through. It takes a lot to do that, and I can tell you’re really suffering right now. If you aren’t already doing this, and only if it feels helpful to you, you might find it comforting to read some other people’s stories and follow along with their journeys here too. Sometimes seeing how others are navigating similar things can be useful. You could even say hello when you visit their pages, if it feels right. It’s just an idea someone suggested to me early on, and I found it very helpful.

3 hours ago, RachelSusan said:

@EDP6893 Hey EDP, I’m really glad you keep showing up here and sharing what you’re going through. It takes a lot to do that, and I can tell you’re really suffering right now. If you aren’t already doing this, and only if it feels helpful to you, you might find it comforting to read some other people’s stories and follow along with their journeys here too. Sometimes seeing how others are navigating similar things can be useful. You could even say hello when you visit their pages, if it feels right. It’s just an idea someone suggested to me early on, and I found it very helpful.

I don't know of any stories or posts of people similar to me. People who are in so much pain they can't leave the house.

10 minutes ago, EDP6893 said:

I don't know of any stories or posts of people similar to me. People who are in so much pain they can't leave the house.

There are quite a few that I at least seen but we all experience slightly different symptoms.

I sometimes have terrible, crippling pain for days on end and must remind myself that this is withdrawal otherwise my mind wanders to catastrophe..

It's all part of this difficult process, which will pass with time.

Edited April 28Apr 28 by Fullhealing

Should I try reinstating the daridorexant to see if things improve? I know I stopped last year and it was fine, but the timing lines up strongly with my new withdrawal symptom flare up and all of you have recommended against me stopping it.

I stopped on march 26th and the flare up started on april 2nd.

Edited April 28Apr 28 by EDP6893

28 minutes ago, EDP6893 said:

Should I try reinstating the daridorexant to see if things improve? I know I stopped last year and it was fine, but the timing lines up strongly with my new withdrawal symptom flare up and all of you have recommended against me stopping it.

I stopped on march 26th and the flare up started on april 2nd.

This is tricky since the flare may or may not be related and a risk as the body can resist it now, I personally wouldn't but if you do decide to try, start with a very low dose and see how the body reacts, definitely don't start at 50mg though, that could be way too much for your system.

Edited April 28Apr 28 by Fullhealing

6 hours ago, EDP6893 said:

Should I try reinstating the daridorexant to see if things improve? I know I stopped last year and it was fine, but the timing lines up strongly with my new withdrawal symptom flare up and all of you have recommended against me stopping it.

I stopped on march 26th and the flare up started on april 2nd.

I think trying RI is reasonable as you think there is correlation with your symptoms and stopping the drug. I tend to agree tbh. It’s been a month. So be a bit cautious and try 5mg (10%).

Give it a week or two and see how it goes. Can always increase if needed.

If you get a lot worse stop it. If not just hold at least 4 days to access the effect.

Preparing Doses for Tapering - Weighing & DIY Liquids

17 hours ago, Fullhealing said:

This is tricky since the flare may or may not be related and a risk as the body can resist it now, I personally wouldn't but if you do decide to try, start with a very low dose and see how the body reacts, definitely don't start at 50mg though, that could be way too much for your system.

Yesterday I tried 25mg (I have 50mg tablets) I cannot cut it smaller and there is no liquid version I can get. Today I feel the same. Is it safe to try reinstating? What should I do?

Edited April 29Apr 29 by EDP6893

11 hours ago, Chippy said:

I think trying RI is reasonable as you think there is correlation with your symptoms and stopping the drug. I tend to agree tbh. It’s been a month. So be a bit cautious and try 5mg (10%).

Give it a week or two and see how it goes. Can always increase if needed.

If you get a lot worse stop it. If not just hold at least 4 days to access the effect.

Preparing Doses for Tapering - Weighing & DIY Liquids

Should I try it for 4 days then? It has to be 25mg as I have 50mg tablets and I cannot accurately measure it beyond just cutting the tablets in half.

7 minutes ago, EDP6893 said:

Yesterday I tried 25mg (I have 50mg tablets) I cannot cut it smaller and there is no liquid version I can get. Today I feel the same. Is it safe to try reinstating?

I would try cutting into 2 quarters, I know it won't be accurate but I think it's better.

a scale would be the best obviously, you may consider buying a good one, you'll need it for further reduction anyway.

11 minutes ago, EDP6893 said:

Should I try it for 4 days then? It has to be 25mg as I have 50mg tablets and I cannot accurately measure it beyond just cutting the tablets in half.

I see in your post to Fullhealing you say you feel ok. This is good. There are ways to make smaller doses and so on in the link I have given you. Obviously that requires some kit to do. You have not been off long, and as you have not felt a bad reaction a 50% RI may be fine for you. I’d hold this dose and see how it goes.

18 minutes ago, Fullhealing said:

I would try cutting into 2 quarters, I know it won't be accurate but I think it's better.

a scale would be the best obviously, you may consider buying a good one, you'll need it for further reduction anyway.

Ok I will try 1/4 then instead of 1/2

12 minutes ago, Chippy said:

I see in your post to Fullhealing you say you feel ok. This is good. There are ways to make smaller doses and so on in the link I have given you. Obviously that requires some kit to do. You have not been off long, and as you have not felt a bad reaction a 50% RI may be fine for you. I’d hold this dose and see how it goes.

When I say "ok" I mean still in the same extreme pain as I was off the daridorexant. No changes.

10 minutes ago, EDP6893 said:

When I say "ok" I mean still in the same extreme pain as I was off the daridorexant. No changes.

No I’m sorry and I realise. I should say you have noticed no worsening.

I would get some scales for sure and make sure your dose is consistent.

44 minutes ago, Chippy said:

I would get some scales for sure and make sure your dose is consistent.

Which ones would you recommend for the uk?

I do have some cooking scales already so I might not need any new ones.

Edited April 29Apr 29 by EDP6893

17 minutes ago, EDP6893 said:

Which ones would you recommend for the uk?

I do have some cooking scales already so I might not need any new ones.

You’d need some jewellers scales. Gem-20 are the popular more affordable option. I’m in the uk too. I got them from eBay.

I have also been getting some weird electric shock sensations in some of my toes or ankles occasionally. Once every day or every other day. Starting this month since the flare up began.

1 hour ago, EDP6893 said:

I have also been getting some weird electric shock sensations in some of my toes or ankles occasionally. Once every day or every other day. Starting this month since the flare up .

Very common, I had for about 4 months non stop electric sensations with numbness in various areas including twitching and now it's almost non-existent, don't worry about it, like the rest will pass.