19 hours ago, EDP6893 said:

I've got other symptoms too since I started the metformin. A disgusting blood like taste in my mouth, and bad nausea.

Sorry to hear, hopefully these pass for you soon now you are stopping the drug.

23 hours ago, EDP6893 said:

I feel like and imagine that even if I got a take away it wouldn't make the withdrawal or pain better. It'd be just as bad. Just a temporary distraction.

It's good that you recognise this.

23 hours ago, EDP6893 said:

What I really want is to recover and get better. And I hope despite this set back, I can still recover from all my withdrawals, including these new ones. I hope I can do this and it's not too late to reverse everything; the diabetes, the back pain, the morbid obesity, all the withdrawals, etc...

It is absolutely true that:

1. you can recover from withdrawal

2. healthier habits such as improved diet can have a large, positive impact on your health and wellbeing overall

For example, if you eat better, you might feel a bit better. This might then make it easier to do light activity regularly, such as walking, which then leads to further improvements in your health and wellbeing, and you gain momentum with it all.

I think it's helpful, to break it down into much smaller, achievable goals in the short term.

For example, you might try something like:

"I will not have any takeaways this week, and I will go for a walk every day that I'm not in too much pain, even if I don't really want to"

The big results and goals can be daunting to go after, but they come from make sure the small steps like this are happening consistently.

Things are much worse than I realized. It's been almost a week since I stopped the metformin but the disgusting taste, nausea and burning skin have not gone away at all. I needed to lose a lot of weight to get rid of my diabetes as fast as possible (as well as all the back pain, the general discomfort of being so obese, the fatigue), and the only way I know how to do this is to have foods that taste nice to me that I can use to cope mentally, instead of the take aways.

But my taste has been ruined. There now isn't a single food or drink I enjoy. Even the new foods I'd found recently. Everything tastes the same disgusting vile blood like metallic taste.

I looked it up and it says I have dysgeusia which is nerve damage of your taste buds. For people with autism like me it can take 3 months to over a year to recover! All this from just 5 days of metformin, a drug that I had in the past and had no effect on me back then.

I'm never going to lose weight now! Everything has been ruined!

Edited June 4Jun 4 by EDP6893

My tongue and mouth have also started burning in the last hour. It just keeps getting worse....

33 minutes ago, EDP6893 said:

My tongue and mouth have also started burning in the last hour. It just keeps getting worse....

I have noticed that many new symptoms can show up as your body heals.... hang in there. Hopefully, it will go away soon.

@EDP6893 I’m sorry this has happened, I know you were starting to do better with food and this feels like a really hard setback. I would try not to get too hung up on the timeline for recovery — as always, it’s possible that you’ll get better faster than the timelines you’re finding online, and even if it takes a while for full recovery I’m sure there will be progress along the way.

As for the food, maybe when you’re feeling up to it you could spend some time looking for and practicing healthier recipes that you think you’ll enjoy once your taste buds have recovered? That way once you can enjoy food again you’ll have a range of different options you can prepare for yourself.

I hope you start feeling better soon.

@EDP6893 I hope these new symptoms settle soon, it might take some time for your body to reset having stopped the metformin, hopefully they go completely in time. I know this must be so disheartening, remember your better days recectly, all proof your body is working hard to get things better for you. Once your taste buds return to normal you can get right back on track with your new eating plans!

@EDP6893 everything I'm reading states that it can take 2-4 weeks for the taste to dissipate after stopping metformin.

I think it's premature to assume it could be long-term.

Recently had 2 + days again. Today seems normal so far. Horrible taste and tingling still bad.

I've been getting extremely painful headaches for a while now. It's awful.

17 hours ago, EDP6893 said:

Recently had 2 + days again. Today seems normal so far. Horrible taste and tingling still bad.

Im sorry to read @EDP6893 I also have the headaches, I understand how horrible they are. I hope they pass for you soon.

2 hours ago, Chippy said:

Im sorry to read @EDP6893 I also have the headaches, I understand how horrible they are. I hope they pass for you soon.

So do I.

My visual snow keeps getting worse and worse. I hope it's just stress so that it is possible for it to get better. Because I am terrified how bad it's getting, and at this rate I will go blind.

Metformin damage has not gone away at all either.

Edited June 9Jun 9 by EDP6893

So sorry you’re struggling @EDP6893. I’m thinking of you and hoping things improve for you soon.

2 hours ago, EDP6893 said:

My visual snow keeps getting worse and worse. I hope it's just stress so that it is possible for it to get better. Because I am terrified how bad it's getting, and at this rate I will go blind.

Metformin damage has not gone away at all either.

I hope things improve for you. You know some symptoms might get good and bad on and off until you heal. You will get better again...

Electric shocks got a lot worse today :( They've been pretty much constant all day so far. Metformin issues (horrid taste, more nausea, more shocks, burning skin) still not any better. The shocks are actually worse.

Am I ever going to get better? Or am I doomed to never recover from these issues?

7 hours ago, EDP6893 said:

Electric shocks got a lot worse today :( They've been pretty much constant all day so far. Metformin issues (horrid taste, more nausea, more shocks, burning skin) still not any better. The shocks are actually worse.

Am I ever going to get better? Or am I doomed to never recover from these issues?

We all recover from this. You have felt good days in the past. The healing process is not linear, so this back and forth are normal during this journey. It's frustrating, but hang in there, you will get better.

Just try not to make changes to medications...

We can do this....

The horrible taste and worse nausea have not gone away. Haven't had any new windows for my genital burning withdrawal either. Visual snow keeps getting worse as I keep getting more stressed (I think that is why it's getting worse). The only good thing is that I am sticking to having less take aways and trying to lose weight.

Edited June 15Jun 15 by EDP6893

39 minutes ago, EDP6893 said:

The only good thing is that I am sticking to having less take aways and trying to lose weight.

Edited 35 minutes ago35 min by EDP6893

Focus on the positive. I also think stress can make us feel worst since this journey is not easy at all, but you have been doing great. A window will come again...

Hang in there....

2 hours ago, EDP6893 said:

The horrible taste and worse nausea have not gone away. Haven't had any new windows for my genital burning withdrawal either. Visual snow keeps getting worse as I keep getting more stressed (I think that is why it's getting worse). The only good thing is that I am sticking to having less take aways and trying to lose weight.

It's great that you're still trying to eat better! I hope you take some pride in the fact that you're still trying to take care of yourself while enduring all of this. That takes strength. I'm sorry you're still experiencing some bad symptoms -- it's awful, but they will fade with time.

4 hours ago, SarahMc said:

It's great that you're still trying to eat better! I hope you take some pride in the fact that you're still trying to take care of yourself while enduring all of this. That takes strength. I'm sorry you're still experiencing some bad symptoms -- it's awful, but they will fade with time.

I don't know when I'll get another window.

5 hours ago, Raymond said:

Focus on the positive. I also think stress can make us feel worst since this journey is not easy at all, but you have been doing great. A window will come again...

Hang in there....

I hope another window comes soon.

2 hours ago, EDP6893 said:

I don't know when I'll get another window.

I know, one of the hardest things about this journey is that timelines aren’t predictable and none of us know how long recovery will take. So the key is to try to practice acceptance day by day and trust that one day things will be better. I know it’s hard, but it is honestly helpful.

18 hours ago, EDP6893 said:

The only good thing is that I am sticking to having less take aways and trying to lose weight.

You should be very proud of yourself for this. Keep going!!!!

Sorry to hear you are having a difficult few days again, time will settle all of this for you, so typical of this process to be up and down and make us feel like we are not improving.

12 hours ago, EDP6893 said:

I don't know when I'll get another window.

You 100% will!