3 hours ago, Sminismoni said:

Another horrific night. 1 hour of sleep. Skin prickling all over, a churning washing machine feeling inside my body, nausea, confusion, joint pain and all while feeling wide awake like I've taken cocaine.

Tried weighted blanket - Nope

Tried stretching - Nope

Hot pack - No

Cold pack -No

Rocking to and fro - just made me dizzy

Tried some food - more nausea

And it's still going.....

Sorry to read @Sminismoni such a Warrior, as you said earlier, one hour at a time, stitch enough of those together and you'll get there. xxx

so sorry to hear you're still suffering @Sminismoni . I understand we're all different in how our symptoms present and how awful they can be but we're not alone. I hope you find stability and relief in the near future. I've had 2 episodes losing months which were horrific and they got worse before they got better. The important thing is stability eventually arrived.

On a different topic I was thinking go you today. I was researching my dry eye remedies and came across Borage oil. It was a component in one of my treatments which was mainly omega 3s. I wanted an alternative to the omegas due their propensity for oxidation. When your eyes become a priority to might want to look into it.

Hope you get some relief. 🤗

The same, @Sminismoni, you are not alone. All my body is under electricity, not slept at all, terror and sweats. Nothing helps...

Thinking of you @Sminismoni, hope you get a bit of relief today

@LostinCanada @Chippy I was following another thread talking about vitamin supplements. I was deficient in Vit D, Folate and B12 on tests done in November 2025. Not knowing much about withdrawal then (even still drinking alcohol, thinking this would be finished in 6 weeks), I jumped on Vit D, 400mcg Folate and 400mcg B12. I'm still on them but want to stop. Have you read anything on how to taper supplements?

59 minutes ago, Sminismoni said:

I jumped on Vit D, 400mcg Folate and 400mcg B12. I'm still on them but want to stop.

I wouldn't be too worried about stopping those personally, just don't stop them all at once and stop one at a time, you might have a bit of a difference for a few days but other then that I wouldn't expect any major issues.

You might want to wait for other responses on this topic.

1 hour ago, Sminismoni said:

@LostinCanada @Chippy I was following another thread talking about vitamin supplements. I was deficient in Vit D, Folate and B12 on tests done in November 2025. Not knowing much about withdrawal then (even still drinking alcohol, thinking this would be finished in 6 weeks), I jumped on Vit D, 400mcg Folate and 400mcg B12. I'm still on them but want to stop. Have you read anything on how to taper supplements?

Hi @Sminismoni I personally took vitamin D for a long time and stopped it abruptly with no issues. My blood work showed my D was right on the high level so that is why I stopped.

As far as the B12 and B9, I just started taking it slowly recently but am experiencing issues so I am stopping it abruptly.

I know some have had issues stopping magnesium specifically.

Since you are concerned, you could reduce 25% for a week and see if there are any issues. Then repeat for 3 more weeks, monitoring any symptoms. As @Lighty mentioned, do one at a time.

Hope that helps. ❤️🙏

@Sminismoni I agree with both @Lighty and @LostinCanada just come off one at a time and do it gradually. No big shocks for a sensitive nervous system, that is key.

Do you feel as though the supplements are giving you issues?

I don't really take any, but also when I have tried them over the years I haven't really noticed any change either way.

@Luke no, I am similar to you. Nothing makes it better or worse. I've even had the occasional full strength coffee over the past few months when I get bored of herbal teas. Doesn't affect me one way or another.

10 minutes ago, Sminismoni said:

e even had the occasional full strength coffee over the past few months when I get bored of herbal teas. Doesn't a

Same, and I used to be quite sensitive to caffeine.. completely numb and blank

Hello @Sminismoni

Alcohol limits the absorption of vitamins b12 and b9 (folic acid). It’s good that you stopped. Dietary supplements are not a substitute for a varied and balanced diet. Moreover, they are often full of chemical additives.

For vitamin b12, have a good steak from time to time. For vitamin B9, green leafy vegetables and legumes. For both vitamin: the liver!

Enjoy your meal!

Regarding the stop, it does not seem relevant to gradually stop vitamin D. I didnt have problem to brutally stop last year. I would say the same for vitamins B but Im not 100% sure of it. Just my opinion.

Thanks for the advice @poulette38. Unfortunately I am so disabled currently and also cognitively impaired, I can't plan meals and I can't cook food consistently. About 3 days a week it is hard to stand up, find my way around my kitchen, even remembering what drawers certain utensils are in. It makes healthy eating very difficult as I am reliant on grocery delivery of mainly microwave food.

10 minutes ago, Sminismoni said:

It makes healthy eating very difficult as I am reliant on grocery delivery of mainly microwave food.

I could give you 2 options:

1. Order home made food from some place you know is the healthiest possible and get basic things like the right full carbs and meat or maybe salads as well.

2. keep making food very simple, lets say barley with lentills, just boil them until cooked, don't go for perfect tasty food, just cook things in a bare minimum way that is eatable but still healthier.
   

Also buy a lot of non cooking needed food, like nuts, fruits, vegetables (just eat them like that), natural nut spreads, eggs (which only require boiling), full bread, and other stuff like that.

Edited July 10Jul 10 by Lighty

I’m so sorry for everything you’re going through.

It is also very difficult for me to prepare meals. I was able to barely make a vegetable soup a few weeks ago, and it left me exhausted the next few hours.

Most of the time, I also buy dishes already ready; I try to take them with as few additives as possible. I also order bistro dishes at the restaurant at my doorstep. It’s also very expensive to do that, so I’m doing my best to alternate a bit. Maybe you have a restaurant near your home that does deliveries?

On top of that, I have no appetite. And believe me, I’m a big eater in normal times. (Without being obese because Im also very dynamic normally). It’s a real struggle to put food on my table; if I let myself go, I would starve. I also lost all notion of the hours, days, and months that passed. Today I was on leave and I ate lunch at 5:30 pm.

Many people in wd have problems with their diet. I’m thinking of @siderale on SA who said she had lost a lot of weight: her doctor prescribed protein meals for her, otherwise, she said she ate a lot of "easy to eat" foods like rice, pasta...

She regained her appetite over time and recovered all the weight she had lost.

Just saw the post of @Lighty . He already gives you excellent advice! I also buy: peanuts, almonds, hazelnuts, chocolate bars, yogurt, milk, products like tarama or meat or fish terrines, that are easy to spread on bread, soups, cheeses... filling and easy-to-eat foods like bananas, avocados...

Also everything that is "pleasantness" of dishes and makes them more nutritious, such as fresh cream in a glass jar (easy to add a tablespoon in a bowl of vegetable soup) or grated Gruyère cheese, easy to add to pasta, if one day that’s all you can eat ; Mozzarella to add to raw vegetable salads...

As @Lighty mentioned, we are not able to feed like ministers. The body just needs a little of everything. I think that if we can do that, it’s already a lot!

PS: In case of extreme fatigue, I buy cod liver (in cans). My grandmother always told me that pregnant women were given it in her time. It’s also excellent for the nervous system.

And the micro-waves are to be thrown away! I saw a report about it on TV a long time ago: the waves pass through food and make it carcinogenic, which is all the more true for foods rich in water, like vegetables! So I invested in an oven.

Besides, I found that the food came out with a different taste, after putting it in the microwave! Especially the vegetables, by the way!

Edited July 10Jul 10 by poulette38

Also biscuits, jams, honey...

Cans of sardines or mackerel, rollmops, olives in jars, dried figs or dates. Théodore Monod lived in the desert and ate only a few dates with camel’s milk.

Lot of garlic too, both raw and cooked! Fresh onions...

and I always try to add spices when possible, especially pepper. 😀 I recommend adding it to meats or anything else just before eating, not while cooking, as heat alters its properties.

Pepper is porous: it captures toxins from the body, and is then eliminated in the stool. It should preferably be taken organic because I also saw a report on the cultivation and trade of pepper, and the conventional is clearly bombarded with harmful (blue) products.

Soon, a new topic to open "in the kitchen with @poulette38 "😂 . Or "how not to let your body starve while wd" 😑. Lot of things to share, for sure! :)

Edited July 10Jul 10 by poulette38

@Sminismoni Can I ask you about your burning head and mouth? How exactly does it feel? On the skin? Or outside? Where? Does it feel like "one wave"?? Spreading and connected feeling?

Edited July 10Jul 10 by The Dust

Do you also feel that all foods are the same, @Sminismoni ? Eating a cake, an apple or a steak it's the same thing: no taste and no satisfaction? :(

17 hours ago, Sminismoni said:

@Luke no, I am similar to you. Nothing makes it better or worse. I've even had the occasional full strength coffee over the past few months when I get bored of herbal teas. Doesn't affect me one way or another.

I also drink coffee.

I didn't tolerate it very well for a while, I can't really remember how long now. Maybe the first year.

Since then, it's been fine, and it even helps a little with the fatigue which is still my major issue. Most days I just have one first thing, and occasionally a second mid morning but usually not.

Hi @Sminismoni,

Just stepping by and curious how you are doing? :)

I know you were very worried for your job and Visa. Does that work out for you? ❤️

4 hours ago, Sophia said:

Hi @Sminismoni,

Just stepping by and curious how you are doing? :)

I know you were very worried for your job and Visa. Does that work out for you? ❤️

Yes, I am also thinking of you, as are surely many others. Your situation is very difficult, let us know how you are doing, if you feel up to it. If you are not, no problem, just know that there are people rooting for you.