6 hours ago, Chippy said:

Love this Raymon!

@Chippy . It's nice to feel a lot better. I might hold until few personal stressors resolve. Hard to go through WD and have a sensitive system.

07/17/2026- another finally good day

Today so far seems the same as yesterday. I love when I feel good.

I also slept again from 1030pm straight to 5am. This is happening more often despite the struggles. I did not experience this in my first 18 months journey. After 19 months and forward, when I feel good, my sleep being better and no waking up.

What a unpredictable journey.......

Also muscle pain on my shoulder and neck being gone in the past week or so. I am no longer feeling 105 years old....

Once in awhile, I feel just very mild burning sensation here and there, like in small areas of the body. But it just on and off...

Overall, it's my second day feeling a lot better...

1 hour ago, Raymond said:

07/17/2026- another finally good day

Today so far seems the same as yesterday. I love when I feel good.

I also slept again from 1030pm straight to 5am. This is happening more often despite the struggles. I did not experience this in my first 18 months journey. After 19 months and forward, when I feel good, my sleep being better and no waking up.

What a unpredictable journey.......

Also muscle pain on my shoulder and neck being gone in the past week or so. I am no longer feeling 105 years old....

Once in awhile, I feel just very mild burning sensation here and there, like in small areas of the body. But it just on and off...

Overall, it's my second day feeling a lot better...

Bravo @Raymond so great to feel great 😃 keep doing amazing!

07/20/2026- continue my ups and down.

In the last two days, I was on this up and down with same symptoms during the morning hours for like 2 or three hours. In the afternoons, it always gets better.

Last night, I went to sleep around 10pm and woke up at 5am with intrusive thoughts and mild burning sensation on my left side of arm and chest. It's a a symptom that I get on and off, but mild. Its like feeling hot more than a burning sensation. Either way, it's mild but still bothers me. My brain felt a little pressure this morning, but it went away. I feel Little anxious and few areas of upper body feels hot which as left side back shoulder, upper left arm area, upper stomach area, right side chest area. Also, after long time, tinnitus seems to come back again. I feel a noise or something on the background.

I lost few morning sleeps, but napping came back again. It's being on and off as well. Most of my symptoms are being little weaker, and not every day thanks God. Also muscle pain it's just in few areas. It feels like someone pintches me in few areas...

Let see how my morning goes today. I'm hoping that I can work from my hammock since the day is beautiful outside.

My bad hours are from 5am to 9am. Good thing is that I have seeing improvement but slowly. Once cortisol level starts to slow down, it's when I feel better....

In the name of Jesus Christ, we will all heal. I hope longer windows comes. I lost my 9 consecutive weeks feeling great and back on this on and off situation....

Let's not loose hope. Body knows how to heal.

07/21/2026- mornings ups and downs continues...

Yesterday was an ok day. I pretty much had mild anxiousness in the morning for two hours. I had lack of concentration and in the afternoon, I had mild left side headache again.

I went to sleep late around 1230am. I had those old feelings wanting to stay late watching movies as I used to before medication.

I woke up when my alarm went off around 5:45am to get ready for the day. No cortisol and only mild intrusive thoughts with mild left arm upper area burning/hot sensation. Tinnitus came back after being off for probably weeks. It's like a buzzing sound in the background that I can only notice if I'm in silence. It does not bothers me. 90% of the time, I don't even pay attention to this....

Overall, this morning seems better than yesterday so far. I feel mild blah and at the same time energized....

Let's continue this journey and hope in the name of Jesus Christ, we will heal....

You're doing great despite the annoying flare-ups. At your stage of recovery, its all about perspective, and you're keeping yours--not letting symptoms be more than annoyances. You're on the road to full recovery!

5 hours ago, Raymond said:

07/21/2026- mornings ups and downs continues...

Yesterday was an ok day. I pretty much had mild anxiousness in the morning for two hours. I had lack of concentration and in the afternoon, I had mild left side headache again.

I went to sleep late around 1230am. I had those old feelings wanting to stay late watching movies as I used to before medication.

I woke up when my alarm went off around 5:45am to get ready for the day. No cortisol and only mild intrusive thoughts with mild left arm upper area burning/hot sensation. Tinnitus came back after being off for probably weeks. It's like a buzzing sound in the background that I can only notice if I'm in silence. It does not bothers me. 90% of the time, I don't even pay attention to this....

Overall, this morning seems better than yesterday so far. I feel mild blah and at the same time energized....

Let's continue this journey and hope in the name of Jesus Christ, we will heal....

Afternoon update....

For the first time in 20 months, I feel so sleepy today......two more hours to go .....wow!

Edited July 21Jul 21 by Raymond

07/22/2026- ups and downs continues

Same, nothing bad and nothing good, but definitely more good than bad ....

My left side headache is back but less intense. My muscles pain also back but not intense. It's continues to be more on shoulder and back of the neck. Also, I'm feeling hot and Texas hot weather doesn't help.....

Overall, I have been stable for the past days or weeks....

Let's continue this journey and faith in Jesus Christ..

7 hours ago, Raymond said:

07/22/2026- ups and downs continues

Same, nothing bad and nothing good, but definitely more good than bad ....

My left side headache is back but less intense. My muscles pain also back but not intense. It's continues to be more on shoulder and back of the neck. Also, I'm feeling hot and Texas hot weather doesn't help.....

Overall, I have been stable for the past days or weeks....

Let's continue this journey and faith in Jesus Christ..

Update..

I accomplished many things today. I have noticed symptoms do not control my life. To be honest, besides few bumps, I have been the same.

So far, I can handle the 1.5% reduction... I figured that I need to love all my same symptoms during this journey. Become best friend of the symptoms... 😂

Overall, in the last 5 months, a lot of improvements despite the ups and down. I'm able to work, have fun, watch tv, read something, somehow sleep 5 ton6 hours, etc...

07/23/2026- office half day work, no issues, no fear sensation...

Today, I had to come to office for half day. I woke up due to my alarm and no cortisol issues nor fear. I actually feel good at work..

I'm just feeling tiredness so far and mild stomach gases today...

Other than that, it seems a good morning so far ..

07/24/2026- same good days ...

I have been pretty much the same. Some days fine, and others ok. No major changes or major symptoms so far....

Overall, I'm just the same stable person ...I do feel like sleepy...

07/28/2926- recovery process continues...... manageable and stable with same morning ups and downs....

During the last three days, I have been stable and pretty much same ups and downs during morning hours. One thing that I noticed is that after 1pm, I started to feel sleepy, and I believe I did a hour and half napping the other day with no jumping into panic after falling asleep. Also, I have enjoyed few activities. Somedays, I have experienced enjoyment while others no enjoyment at all. The good thing is that waves are only in the few morning hours when I experience the ups and downs.

Since I have being the same, I decided today to go from .0706g (4.73mg) to .0700g (4.68mg, 85% reduction) and hoping for the best....I hope that my body continues to unlock good things and waves becomes a lot weaker. I lost my 9 consecutive weeks feeling great about a month ago, but I'm hoping those return again....

What an unpredictable journey we have to deal with. My main symptoms continues to be hot or burning sensation on left side arm and body, but a lot less intense. It just still bothers me. And fear sensation in the background a lot less intense and not every day....

Let's hope things gets better and at least the fear sensation goes away.

One improvement: yesterday, I got stopped by a police officer. During the beginning of this journey, I will go into anxiety and panic mode. Yesterday, I did not get any anxiety and only felt this weird out of breath sensation for like few seconds. Then, it went away and my body came back to normal. It seems that I'm still healing. I did not get any ticket as the police just wanted to tell me that I was missing my front plate. In Texas, you have to have two plates front and back, but previous owner only had one plate. Overall, going to register car under my name.... 😆

Well, taking everything into consideration and my journey in the last few months, I am going to continue a slow taper for now and hoping that the bothering symptoms will eventually fade away or become less frequent....

Let see in the name of Jesus Christ, we will all heal....

9 hours ago, Raymond said:

07/28/2926- recovery process continues...... manageable and stable with same morning ups and downs....

During the last three days, I have been stable and pretty much same ups and downs during morning hours. One thing that I noticed is that after 1pm, I started to feel sleepy, and I believe I did a hour and half napping the other day with no jumping into panic after falling asleep. Also, I have enjoyed few activities. Somedays, I have experienced enjoyment while others no enjoyment at all. The good thing is that waves are only in the few morning hours when I experience the ups and downs.

Since I have being the same, I decided today to go from .0706g (4.73mg) to .0700g (4.68mg, 85% reduction) and hoping for the best....I hope that my body continues to unlock good things and waves becomes a lot weaker. I lost my 9 consecutive weeks feeling great about a month ago, but I'm hoping those return again....

What an unpredictable journey we have to deal with. My main symptoms continues to be hot or burning sensation on left side arm and body, but a lot less intense. It just still bothers me. And fear sensation in the background a lot less intense and not every day....

Let's hope things gets better and at least the fear sensation goes away.

One improvement: yesterday, I got stopped by a police officer. During the beginning of this journey, I will go into anxiety and panic mode. Yesterday, I did not get any anxiety and only felt this weird out of breath sensation for like few seconds. Then, it went away and my body came back to normal. It seems that I'm still healing. I did not get any ticket as the police just wanted to tell me that I was missing my front plate. In Texas, you have to have two plates front and back, but previous owner only had one plate. Overall, going to register car under my name.... 😆

Well, taking everything into consideration and my journey in the last few months, I am going to continue a slow taper for now and hoping that the bothering symptoms will eventually fade away or become less frequent....

Let see in the name of Jesus Christ, we will all heal....

Update....

Mild left side headache again ...

07/29/2026- same symptoms continuing recovery process...

Yesterday was an ok day. I was feeling just blah and unmotivated or bored. Then, I started to feel the same left side headache, but it was mild.

I also felt to sleep in the couch for a nap. In the left few days, I have not forced my nappings. I just fall asleep automatically. This is a big change so far since I haven't nap normally in 29 months journey.

I went to sleep around 1030pm and slept through until alarm went off at 6am. This is another improvement as I seeing lately that I am sleeping through without waking up few times during the night. It's still not perfect, but I guess I am getting there.

I did another.85% drop, so let see how it goes. I can only hope for the best and hope, things gets even better.

11 hours ago, Raymond said:

07/29/2026- same symptoms continuing recovery process...

Yesterday was an ok day. I was feeling just blah and unmotivated or bored. Then, I started to feel the same left side headache, but it was mild.

I also felt to sleep in the couch for a nap. In the left few days, I have not forced my nappings. I just fall asleep automatically. This is a big change so far since I haven't nap normally in 29 months journey.

I went to sleep around 1030pm and slept through until alarm went off at 6am. This is another improvement as I seeing lately that I am sleeping through without waking up few times during the night. It's still not perfect, but I guess I am getting there.

I did another.85% drop, so let see how it goes. I can only hope for the best and hope, things gets even better.

Another good day

07/30/2026- ups and downs, good and ok, same old same...

Yesterday was good day, but today, I am little bit feeling dumb or something.....slow thinker...and headache on left side by left ear again. It is not intense, but it is bothering symptom. My ears are also like popping out air, little pressure, left side of head feels heavier than right side. I also feel little chest fatigue...

The weird thing is that I also feel somehow good.

Overall, everything is manageable but un comfortable...

My sleep quality is well so far and it has improved just a tiny bit. No cortisol issues..

Great to know my brain is healing.....

1 minute ago, Raymond said:

07/30/2026- ups and downs, good and ok, same old same...

Yesterday was good day, but today, I am little bit feeling dumb or something.....slow thinker...and headache on left side by left ear again. It is not intense, but it is bothering symptom. My ears are also like popping out air, little pressure, left side of head feels heavier than right side. I also feel little chest fatigue...

The weird thing is that I also feel somehow good.

Overall, everything is manageable but un comfortable...

My sleep quality is well so far and it has improved just a tiny bit. No cortisol issues..

Great to know my brain is healing.....

Even "normal" people have down days. Its great you're able to pull back and see how much you've progressed overall instead of letting one off day get you down. Prayers for continued progress!

Raymond, this is wonderful news on sleeping through the night, and no cortisol morning's are better yet. I to get the headaches on the left, it's not as bad as it was in the beginning. You are showing such tremendous progress. Here's to more windows in the future. They are a great thing.

07/31/2026- woke up at 5am again, little burning sensation on and off.

Yesterday was between good and ok. On average, I have feel this way.

I went to sleep around 1030pm where I just felt asleep until I woke again feeling little burning sensation at 5am. Good thing is that I have slept straight through without waking up few times in the middle of the night. It's being probably three weeks like this. I lost napping again, but it's fine.

Let see how this morning goes and how symptoms will behave. In the name of Jesus Christ, we will heal.

3 hours ago, Raymond said:

07/31/2026- woke up at 5am again, little burning sensation on and off.

Yesterday was between good and ok. On average, I have feel this way.

I went to sleep around 1030pm where I just felt asleep until I woke again feeling little burning sensation at 5am. Good thing is that I have slept straight through without waking up few times in the middle of the night. It's being probably three weeks like this. I lost napping again, but it's fine.

Let see how this morning goes and how symptoms will behave. In the name of Jesus Christ, we will heal.

Morning update....

Burning sensation in stomach chest area... I guess, it's part of the withdrawal due to my reduction. It seems also that my head might come back again. There is movement in my brain left area and middle area.

Moving forward, it will pass...

20 hours ago, Bernadette said:

Raymond, this is wonderful news on sleeping through the night, and no cortisol morning's are better yet. I to get the headaches on the left, it's not as bad as it was in the beginning. You are showing such tremendous progress. Here's to more windows in the future. They are a great thing.

Every drop is crazy, but manageable so far...the burning sensation is what I don't like out of all symptoms. It's mild and nothing like the beginning of this journey, but still annoying.... 😆

3 minutes ago, Raymond said:

Every drop is crazy, but manageable so far...the burning sensation is what I don't like out of all symptoms. It's mild and nothing like the beginning of this journey, but still annoying.... 😆

Good news to hear the drops are staying consistent as far as manageability. I see your sleeping fairy well through the night, which is what our bodies need to for healing. Sorry you still deal with the burning sensation, but it sounds like it is tolerable. I forgot, but at what dose are you at currently. You are doing excellent throughout this process. Hang in there you got this my friend.

28 minutes ago, Bernadette said:

Good news to hear the drops are staying consistent as far as manageability. I see your sleeping fairy well through the night, which is what our bodies need to for healing. Sorry you still deal with the burning sensation, but it sounds like it is tolerable. I forgot, but at what dose are you at currently. You are doing excellent throughout this process. Hang in there you got this my friend.

@Bernadette ....i'm currently at 4.68mg (.0700g weight). In 20 months journey from 5mg to 4.68mg, but I did two long holds. One in the beginning of my reinstatement for 7 months, and during month 10 of the journey for like 4 months...I'm not even two years yet...

Your doing great, the lower we go the slower we go, no need to disrupt the cns at this point. Stability is key

8 hours ago, Raymond said:

07/31/2026- woke up at 5am again, little burning sensation on and off.

Yesterday was between good and ok. On average, I have feel this way.

I went to sleep around 1030pm where I just felt asleep until I woke again feeling little burning sensation at 5am. Good thing is that I have slept straight through without waking up few times in the middle of the night. It's being probably three weeks like this. I lost napping again, but it's fine.

Let see how this morning goes and how symptoms will behave. In the name of Jesus Christ, we will heal.

Feeling good so far with the minor issues....