35 minutes ago, Fullhealing said:

Quite awful but I'll spare you the morbidity.. we now how it works so I'll be ok, slowly.. appreciate you jumping in @Raymond 🙏

@Fullhealing ....you will survive this one too. You have survived before and you will survive this again ..

Hold on and listen to your body..

1 minute ago, Fullhealing said:

Thanks for the smile with the la la land (: @mstimc60 we keep fighting right? No other way!

Hope you are good!

Thanks @Fullhealing ! I'm doing pretty well. My wife is out of town till Thursday so I'm catching up on a lot of house maintenance and repair. That keeps me busy!

3 minutes ago, mstimc60 said:

Thanks @Fullhealing ! I'm doing pretty well. My wife is out of town till Thursday so I'm catching up on a lot of house maintenance and repair. That keeps me busy!

Good to hear! Staying busy is always a blessing! @mstimc60

Enjoy the quality time with yourself and the stuff you are doing (;

47 minutes ago, Fullhealing said:

Much appreciation for jumping in with such a kind words while you yourself are going through unspeakable suffering! @ALonelySoul12 It shows how much fighting spirit and courage you still have despite.

I know we will get through this, just a matter of time and patience, let's move forward despite the difficulty, it will pay off with interest!

Big hug back and thank you 🙏💞

You're a pillar in this community, and despite going through hell myself, I don't wish it on anyone else. I've always been one to reach out to those that need it too, so yeah. We're brothers in this struggle and wish you the best!

27 minutes ago, ALonelySoul12 said:

You're a pillar in this community, and despite going through hell myself, I don't wish it on anyone else. I've always been one to reach out to those that need it too, so yeah. We're brothers in this struggle and wish you the best!

@ALonelySoul12 we will get through this, we are all here so strong just chemically blurred.. even if slow and painful we will continue to march boldly towards victory! 💪

The best to you as well!

Edited April 21Apr 21 by Fullhealing

Update 1:30 AM

So a hellish tsunami has been going on for a few days now, stuck like a bone in my throat no matter what I do, so I let it be and contain it..

Today forced myself to work and though I was staring at the screen trying to connect my chaotic brain cells and hardly being productive I was proud that I moved myself a little, from there I had a second session with the therapist, this time I decided to meet at her place, the trip was challenging, the Waze app felt angry and shouted instructions in gibberish so with quite a few mistakes I finally arrived late, the session itself was all over as my mind, I let off a lot steam, can barely remember what I said, it was charged and confused but she was containing and heartwarming.

The return was easier, likely due to releasing some burden.

When I got home I was exhausted and fell asleep for a few hours until recently.

Atm, still very charged.

Physically, the headaches are gone but digestive problems and stomach aches since yesterday.. not really surprising, symptoms keep coming only to be replaced by others.

Tough but we got through Pharaoh, we will get through this too.

I can only hope for an easier day tomorrow.

Edited April 21Apr 21 by Fullhealing

During the height of my WD, I would play a meditation track on my work computer over and over all day just to get by on some days. You should be proud of yourself for going to work and then getting to the therapist. You’re doing all the right things to get through this wave. You can do it!

Dearest @Fullhealing , some wise words from one of my new heroes Whitney Dafoe who has struggle with ME/CFS since he was 22. He is now bedbound and has been totally isolated for many of those years due to nervous overload. I love the last sentence. You are so strong. ❣️

We also endure symptoms that are incredibly painful, unjust, degrading, inhumane, and deeply traumatizing. But from this suffering we have found something within ourselves that we did not know existed before; A powerful strength to endure and survive. And a realization of just how badly we want to live and and experience this life. Most healthy people spend most of their time trying to escape the reality of their lives. ME/CFS patients spend most of their lives crawling, begging, inch by inch pulling themselves over hot coals just to have a chance of feeling alive again. We have found an inner strength and an understanding of the splendid magnificence of life that few people in the world have.

5 hours ago, Fullhealing said:

Update 1:30 AM

So a hellish tsunami has been going on for a few days now, stuck like a bone in my throat no matter what I do, so I let it be and contain it..

Today forced myself to work and though I was staring at the screen trying to connect my chaotic brain cells and hardly being productive I was proud that I moved myself a little, from there I had a second session with the therapist, this time I decided to meet at her place, the trip was challenging, the Waze app felt angry and shouted instructions in gibberish so with quite a few mistakes I finally arrived late, the session itself was all over as my mind, I let off a lot steam, can barely remember what I said, it was charged and confused but she was containing and heartwarming.

The return was easier, likely due to releasing some burden.

When I got home I was exhausted and fell asleep for a few hours until recently.

Atm, still very charged.

Physically, the headaches are gone but digestive problems and stomach aches since yesterday.. not really surprising, symptoms keep coming only to be replaced by others.

Tough but we got through Pharaoh, we will get through this too.

I can only hope for an easier day tomorrow.

Wishing you a much better day today @Fullhealing your strength shining through in this post 👊

3 hours ago, gardengirl2 said:

Dearest @Fullhealing , some wise words from one of my new heroes Whitney Dafoe who has struggle with ME/CFS since he was 22. He is now bedbound and has been totally isolated for many of those years due to nervous overload. I love the last sentence. You are so strong. ❣️

We also endure symptoms that are incredibly painful, unjust, degrading, inhumane, and deeply traumatizing. But from this suffering we have found something within ourselves that we did not know existed before; A powerful strength to endure and survive. And a realization of just how badly we want to live and and experience this life. Most healthy people spend most of their time trying to escape the reality of their lives. ME/CFS patients spend most of their lives crawling, begging, inch by inch pulling themselves over hot coals just to have a chance of feeling alive again. We have found an inner strength and an understanding of the splendid magnificence of life that few people in the world have.

Thanks for the post @gardengirl2 I'm sure it speaks to almost all of us here.🤗

6 hours ago, mstimc60 said:

During the height of my WD, I would play a meditation track on my work computer over and over all day just to get by on some days. You should be proud of yourself for going to work and then getting to the therapist. You’re doing all the right things to get through this wave. You can do it!

Thank you @mstimc60 appreciate your encouragement 🙏

I have a few questions, but I must read your story first as the answers may already be detailed there, I just can't navigate the new version and don't know how to get to your page /:

Can you or @Chippy please direct me there?

Edited April 22Apr 22 by Fullhealing

4 hours ago, gardengirl2 said:

Dearest @Fullhealing , some wise words from one of my new heroes Whitney Dafoe who has struggle with ME/CFS since he was 22. He is now bedbound and has been totally isolated for many of those years due to nervous overload. I love the last sentence. You are so strong. ❣️

We also endure symptoms that are incredibly painful, unjust, degrading, inhumane, and deeply traumatizing. But from this suffering we have found something within ourselves that we did not know existed before; A powerful strength to endure and survive. And a realization of just how badly we want to live and and experience this life. Most healthy people spend most of their time trying to escape the reality of their lives. ME/CFS patients spend most of their lives crawling, begging, inch by inch pulling themselves over hot coals just to have a chance of feeling alive again. We have found an inner strength and an understanding of the splendid magnificence of life that few people in the world have.

Lovely @gardengirl2 very powerful, thank you for sharing that! 🙏🩷

Just wondering what is ME/CFS? struggling to understand a lot of the English terms and wd brain certainly doesn't help..

Edited April 22Apr 22 by Fullhealing

2 hours ago, Chippy said:

Wishing you a much better day today @Fullhealing your strength shining through in this post 👊

Thank you dear @Chippy holding tightly on the strength I have left, so brutal but we're not the type who except defeat 💪

1 hour ago, Fullhealing said:

Thank you @mstimc60 appreciate your encouragement 🙏

I have a few questions, but I must read your story first as the answers may already be detailed there, I just can't navigate the new version and don't know how to get to your page /:

Can you or @Chippy please direct me there?

https://antidepressantrecovery.org/topic/362-mstimc60-recovery-from-paxil-anxiety-and-ocd/#comment-13389 xxxx

1 hour ago, Fullhealing said:

Just wondering what is ME/CFS?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a long-term, complex medical condition that affects multiple body systems. It’s often misunderstood because symptoms can vary widely and don’t always show up on standard tests.

What it feels like

The hallmark is profound fatigue that isn’t improved by rest and is often made worse by activity. A key feature is something called Post-Exertional Malaise (PEM)—after even small physical or mental effort, symptoms can flare up hours or days later.

Other common symptoms include:

• “Brain fog” (difficulty thinking, concentrating, or remembering)

• Unrefreshing sleep

• Muscle or joint pain

• Headaches

• Dizziness or feeling faint when standing (linked to Orthostatic Intolerance)

• Sensitivity to light, sound, or temperature

Causes

The exact cause isn’t fully understood. Research suggests a mix of factors:

• Immune system dysfunction

• Nervous system abnormalities

• Possible viral triggers (some cases begin after infections)

• Energy metabolism problems at the cellular level

There’s no single test for ME/CFS—diagnosis is usually based on symptoms and ruling out other conditions.

Severity

It ranges widely:

• Mild: able to work or study with difficulty

• Moderate: reduced independence

• Severe: mostly housebound

• Very severe: bedridden and needing full-time care

Management (no cure yet)

Treatment focuses on managing symptoms:

• Pacing (carefully balancing activity and rest to avoid PEM)

• Sleep support

• Pain management

• Treating related issues like orthostatic intolerance

• Psychological support (for coping—not as a cure)

Some approaches like graded exercise therapy (GET) have become controversial, and guidance has shifted away from pushing patients to increase activity beyond their limits.

Recognition

ME/CFS is recognized by organizations like the World Health Organization as a neurological disease, and guidelines in the UK from National Institute for Health and Care Excellence emphasize individualized care and pacing.

1 hour ago, Fullhealing said:

we're not the type who except defeat 💪

100%! 💪 Hang in there you got this! Remember AR Warrior! 🛡️⚔️

4 minutes ago, Chippy said:

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a long-term, complex medical condition that affects multiple body systems. It’s often misunderstood because symptoms can vary widely and don’t always show up on standard tests.

What it feels like

The hallmark is profound fatigue that isn’t improved by rest and is often made worse by activity. A key feature is something called Post-Exertional Malaise (PEM)—after even small physical or mental effort, symptoms can flare up hours or days later.

Other common symptoms include:

• “Brain fog” (difficulty thinking, concentrating, or remembering)

• Unrefreshing sleep

• Muscle or joint pain

• Headaches

• Dizziness or feeling faint when standing (linked to Orthostatic Intolerance)

• Sensitivity to light, sound, or temperature

Causes

The exact cause isn’t fully understood. Research suggests a mix of factors:

• Immune system dysfunction

• Nervous system abnormalities

• Possible viral triggers (some cases begin after infections)

• Energy metabolism problems at the cellular level

There’s no single test for ME/CFS—diagnosis is usually based on symptoms and ruling out other conditions.

Severity

It ranges widely:

• Mild: able to work or study with difficulty

• Moderate: reduced independence

• Severe: mostly housebound

• Very severe: bedridden and needing full-time care

Management (no cure yet)

Treatment focuses on managing symptoms:

• Pacing (carefully balancing activity and rest to avoid PEM)

• Sleep support

• Pain management

• Treating related issues like orthostatic intolerance

• Psychological support (for coping—not as a cure)

Some approaches like graded exercise therapy (GET) have become controversial, and guidance has shifted away from pushing patients to increase activity beyond their limits.

Recognition

ME/CFS is recognized by organizations like the World Health Organization as a neurological disease, and guidelines in the UK from National Institute for Health and Care Excellence emphasize individualized care and pacing.

For you @Fullhealing xxx

אנצפלומיאליטיס מיאלגית / תסמונת התשישות הכרונית (ME/CFS) היא מחלה כרונית ומורכבת המשפיעה על מערכות רבות בגוף. לעיתים קרובות היא אינה מובנת כראוי, משום שהתסמינים משתנים מאוד ואינם תמיד ניתנים לזיהוי בבדיקות רגילות.

איך זה מרגיש

התסמין המרכזי הוא עייפות עמוקה ומתמשכת שאינה משתפרת במנוחה ולעיתים אף מחמירה בעקבות פעילות. מאפיין מפתח הוא החמרה לאחר מאמץ (Post-Exertional Malaise, PEM) — לאחר מאמץ פיזי או מנטלי, אפילו קטן, התסמינים עלולים להחמיר שעות או ימים לאחר מכן.

תסמינים נפוצים נוספים:

• “ערפול מוחי” (קושי בריכוז, חשיבה או זיכרון)

• שינה שאינה מרעננת

• כאבי שרירים או מפרקים

• כאבי ראש

• סחרחורת או תחושת עילפון בעמידה (קשור לאי-סבילות לעמידה)

• רגישות לאור, לרעש או לטמפרטורה

גורמים

הגורם המדויק אינו ידוע. מחקרים מצביעים על שילוב של גורמים:

• פגיעה בתפקוד מערכת החיסון

• שינויים במערכת העצבים

• טריגרים אפשריים כמו זיהומים ויראליים

• בעיות במטבוליזם של אנרגיה ברמת התא

אין בדיקה יחידה לאבחון ME/CFS — האבחנה מבוססת לרוב על התסמינים ושלילת מצבים רפואיים אחרים.

חומרת המחלה

המחלה משתנה מאוד בעוצמתה:

• קל: ניתן לעבוד או ללמוד, אך בקושי

• בינוני: ירידה בעצמאות

• חמור: מרותקות לבית

• חמור מאוד: מרותקות למיטה ונדרשת עזרה מלאה

ניהול וטיפול (אין תרופה כיום)

הטיפול מתמקד בהקלה על התסמינים:

• תזמון פעילות (pacing) — איזון בין פעילות למנוחה כדי להימנע מהחמרה

• תמיכה בשינה

• טיפול בכאב

• טיפול בבעיות נלוות כמו אי-סבילות לעמידה

• תמיכה נפשית (לצורכי התמודדות — לא כטיפול מרפא)

חלק מהגישות, כמו טיפול בפעילות גופנית מדורגת (GET), הפכו לשנויות במחלוקת, וההנחיות כיום נוטות להימנע מדחיפת מטופלים מעבר ליכולותיהם.

הכרה במחלה

ME/CFS מוכרת על ידי ארגונים כמו ארגון הבריאות העולמי (WHO) כמחלה נוירולוגית, והנחיות בבריטניה מטעם NICE מדגישות טיפול מותאם אישית וניהול זהיר של הפעילות.

14 minutes ago, Chippy said:

For you @Fullhealing xxx

אנצפלומיאליטיס מיאלגית / תסמונת התשישות הכרונית (ME/CFS) היא מחלה כרונית ומורכבת המשפיעה על מערכות רבות בגוף. לעיתים קרובות היא אינה מובנת כראוי, משום שהתסמינים משתנים מאוד ואינם תמיד ניתנים לזיהוי בבדיקות רגילות.

איך זה מרגיש

התסמין המרכזי הוא עייפות עמוקה ומתמשכת שאינה משתפרת במנוחה ולעיתים אף מחמירה בעקבות פעילות. מאפיין מפתח הוא החמרה לאחר מאמץ (Post-Exertional Malaise, PEM) — לאחר מאמץ פיזי או מנטלי, אפילו קטן, התסמינים עלולים להחמיר שעות או ימים לאחר מכן.

תסמינים נפוצים נוספים:

• “ערפול מוחי” (קושי בריכוז, חשיבה או זיכרון)

• שינה שאינה מרעננת

• כאבי שרירים או מפרקים

• כאבי ראש

• סחרחורת או תחושת עילפון בעמידה (קשור לאי-סבילות לעמידה)

• רגישות לאור, לרעש או לטמפרטורה

גורמים

הגורם המדויק אינו ידוע. מחקרים מצביעים על שילוב של גורמים:

• פגיעה בתפקוד מערכת החיסון

• שינויים במערכת העצבים

• טריגרים אפשריים כמו זיהומים ויראליים

• בעיות במטבוליזם של אנרגיה ברמת התא

אין בדיקה יחידה לאבחון ME/CFS — האבחנה מבוססת לרוב על התסמינים ושלילת מצבים רפואיים אחרים.

חומרת המחלה

המחלה משתנה מאוד בעוצמתה:

• קל: ניתן לעבוד או ללמוד, אך בקושי

• בינוני: ירידה בעצמאות

• חמור: מרותקות לבית

• חמור מאוד: מרותקות למיטה ונדרשת עזרה מלאה

ניהול וטיפול (אין תרופה כיום)

הטיפול מתמקד בהקלה על התסמינים:

• תזמון פעילות (pacing) — איזון בין פעילות למנוחה כדי להימנע מהחמרה

• תמיכה בשינה

• טיפול בכאב

• טיפול בבעיות נלוות כמו אי-סבילות לעמידה

• תמיכה נפשית (לצורכי התמודדות — לא כטיפול מרפא)

חלק מהגישות, כמו טיפול בפעילות גופנית מדורגת (GET), הפכו לשנויות במחלוקת, וההנחיות כיום נוטות להימנע מדחיפת מטופלים מעבר ליכולותיהם.

הכרה במחלה

ME/CFS מוכרת על ידי ארגונים כמו ארגון הבריאות העולמי (WHO) כמחלה נוירולוגית, והנחיות בבריטניה מטעם NICE מדגישות טיפול מותאם אישית וניהול זהיר של הפעילות.

You are a champion @Chippy thanks so much for the Hebrew, your generosity is truly something special! 🙏🩷 I'll see how wd brain works with it lol.

28 minutes ago, Chippy said:

https://antidepressantrecovery.org/topic/362-mstimc60-recovery-from-paxil-anxiety-and-ocd/#comment-13389 xxxx

Thanks bunch great @Chippy 🙏

7 minutes ago, Fullhealing said:

You are a champion @Chippy thanks so much for the Hebrew, your generosity is truly something special! 🙏🩷 I'll see how wd brain works with it lol.

Pleasure Fullhealing! I hope it makes sense as I can't read a word of it!

@Fullhealing So sorry for your suffering don't forget Light always follows darkness and your light is going to be so bright . You've shown strength courage bravery and you keep moving forward .It will all pay off for you in the end ,the reward will be huge, not far to go now ,its coming ,stay strong its worth it in the end . Blessings and good healing to you ,you're nearly there you can do this 🙏❤️

10 minutes ago, Beehive said:

@Fullhealing So sorry for your suffering don't forget Light always follows darkness and your light is going to be so bright . You've shown strength courage bravery and you keep moving forward .It will all pay off for you in the end ,the reward will be huge, not far to go now ,its coming ,stay strong its worth it in the end . Blessings and good healing to you ,you're nearly there you can do this 🙏❤️

Thank you dear @Beehive we've been there before we know how it works though brutal in it has an end.. I really hope you are still in a decent window! 🩷

@Fullhealing Thank you ,yes I am and you will be too ,not far now 🙏

Update 9:30pm

At the morning I forced myself to do some gardening, my mood fluctuated but it wasn't extremely terrible, while I was working an angry branch decided to give me a full-force knockout between the cheek and the eye so now I'm bruised and swollen, lovely.. anyways, did some more gardening and then in the blink of an eye without any trigger, boom, the big bang, if there was still a bit of desire for something it completely disappeared and replaced by morbidities and a terrible catastrophy, no matter what I tried, meditation, breathing exercises, positive thinking it didn't leave and continued to bite hard so I turned myself off for a few hours in a very vivid and sweaty sleep, woke up completely upside down and unfortunately still there..

What's going on, delayed reaction to the reduction, raging hormones, so brutal!

Trying my best not to give in to those chimicalthoughts, let them be, not to hold with the knowing that it's temporary, it must be, everything passes and this too, but gosh the power of it.. unbelievable!

Edited April 22Apr 22 by Fullhealing

Ouch! I hope your bruise fades fast. I trimmed some agave plants and my arms looked like I was a heroin addict! 😅

You did the right thing by trying to work through the catastrophic thinking. Sometimes it feels overwhelming but it will pass. Try to just float through them and you'll be fine. We're here for you!