4 hours ago, Finni said:

The amount of pressure in my body and head is one of the scariest things I’ve ever experienced. It’s completely overwhelming and leaves me weeping.

It’s like every inch of my body is overtaken with pressure burning and electricity. I don’t know how to make sense of this. It just keeps getting worse.

I've had that and it's awful ,so sorry you are suffering, hope it eases for you soon ,think of it like Chippy says ....lots of healing ! 🤗

4/27/26

Yesterday rough but managed golf cart ride afternoon, then very panicky and revved but not in total distress evening. Constant Vibrating and pounding with short terror rushes/pacing. Hard to eat.

9:15 mirt 14.79 mg

Nausea about 20 minutes later. Rocking/bouncing sensations. Vibrating increased. Slept on and off with sweating all night. Woke early 3:30 am with revving system and panic.

Constant vibrating began 7:30 am

Now 1:08 pm still vibrating, buzzing tailbone, inner akasthisia.

I don’t know how I’m ever going to stabilize

It’s nearly all day every day activation and symptoms getting stranger and stranger. (Except for Saturday)

Weird, spongy electricity and panic. Nightmare quality. Pounding, accelerating energy coursing through while body.

Might try compounded capsules using my same manufacturer

1 hour ago, Finni said:

4/27/26

Yesterday rough but managed golf cart ride afternoon, then very panicky and revved but not in total distress evening. Constant Vibrating and pounding with short terror rushes/pacing. Hard to eat.

9:15 mirt 14.79 mg

Nausea about 20 minutes later. Rocking/bouncing sensations. Vibrating increased. Slept on and off with sweating all night. Woke early 3:30 am with revving system and panic.

Constant vibrating began 7:30 am

Now 1:08 pm still vibrating, buzzing tailbone, inner akasthisia.

I don’t know how I’m ever going to stabilize

It’s nearly all day every day activation and symptoms getting stranger and stranger. (Except for Saturday)

Weird, spongy electricity and panic. Nightmare quality. Pounding, accelerating energy coursing through while body.

Might try compounded capsules using my same manufacturer

Glad you had small relief yesterday, that's a good sign but sorry you're still suffering so much.

Hang in there @Finni you're coping bravely. things will slowly balance out, likely not as desired but it will happen, you got this. xxxx

Edited April 27Apr 27 by Fullhealing

Update:

All lab work came back normal. 👍

Thyroid, liver, kidneys, electrolytes hanging in there! (Plus all the other standard testing…)

4/28/26

I just got off my zoom with Mark Horowitz.

He thinks I should go with a compounding pharmacy compounding my manufacturer into the following doses: 3 mg capsules, 11.5 mg capsules and a big stash of .1 mg capsules

He thinks I should take 14.8 mg for a week or two and then drop to 14.7 for a week or two and then go down to 14.6 unless I have gotten worse.

He suggested that the pills be compounded in those varying strength so that I could start taking 3 mg earlier and earlier in the day

I know I can’t do all of this at the same time though so I’m really confused about what to do first

We ran out of time. He just said I would have to figure out the timing of it all.

He also said I could use my scale to figure out 3 mg if I wanted to try to start moving my dose earlier by an hour each day until I get my compounded version

I’m incredibly activated and it feels like it’s from mirtazapine this morning

Since I feel the differences in the way the pill is cut I’m wondering if maybe I’m reacting to one of the fillers in the medication?

When I take more off of the pill to get to the same weight, I swear I’m not as activated

I’m waiting to talk to my psychiatric nurse practitioner about getting a compounded version using my manufacturer

I called the compounding pharmacy yesterday and they do have my manufacturer.

I hope someone weighs in soon

@Chippy

27 minutes ago, Finni said:

4/28/26

I just got off my zoom with Mark Horowitz.

He thinks I should go with a compounding pharmacy compounding my manufacturer into the following doses: 3 mg capsules, 11.5 mg capsules and a big stash of .1 mg capsules

He thinks I should take 14.8 mg for a week or two and then drop to 14.7 for a week or two and then go down to 14.6 unless I have gotten worse.

He suggested that the pills be compounded in those varying strength so that I could start taking 3 mg earlier and earlier in the day

I know I can’t do all of this at the same time though so I’m really confused about what to do first

We ran out of time. He just said I would have to figure out the timing of it all.

I would personally take the whole dose in the usual time, I wouldn't split doses.

I don't have any experience with trying to split mirtazapine's dose, according to the internet and information, psychiatrists sometimes split the dose with this drug but again, no experience.

Hey @Finni

So Mark wants you to move 20% of your dose back to what time? Did he suggest how you should do it?

1 minute ago, Chippy said:

Hey @Finni

So Mark wants you to move 20% of your dose back to what time? Did he suggest how you should do it?

He said I could take 3 mg an hour before my usual dose and then keep moving it an hour every day if I can tolerate that.

That was an option we talked about at the very end of the call and so I didn’t get to ask a lot of questions like, how long should I try the compounded 14.8 before I try to move 3 mg

Should I try that using my usual method before I even try compounded?

46 minutes ago, Finni said:

4/28/26

I just got off my zoom with Mark Horowitz.

He thinks I should go with a compounding pharmacy compounding my manufacturer into the following doses: 3 mg capsules, 11.5 mg capsules and a big stash of .1 mg capsules

He thinks I should take 14.8 mg for a week or two and then drop to 14.7 for a week or two and then go down to 14.6 unless I have gotten worse.

He suggested that the pills be compounded in those varying strength so that I could start taking 3 mg earlier and earlier in the day

I know I can’t do all of this at the same time though so I’m really confused about what to do first

We ran out of time. He just said I would have to figure out the timing of it all.

Hey @Finni

Im not a fan of compounding in general. They will just what you are doing already, but they make mistakes. But by all means if that makes you happier.

I would move the 3mg backwards first, an hour at a time, as Mark suggested until you get to a time that you think is most helpful for you.

Then see how you go. You want to let your system settle before starting to taper. But Id split the dose first and get back to normal again before reducing.

I don't see any reason not to start to move the dose now, before you get a compounded supply, if you still want to do this. But I would not make both changes at once. So wait to start the compounded supply, once you are a settled from moving your split doses.

Or wait till you get the supply then start the split dose. It is totally up to you.

Just do everything one step at a time.

I really, really wish each option weren’t so scary!

ChatGPT is saying I can’t make my own capsule powder because I can’t mix it well enough

Does anyone have experience making their own compounded capsules out of medication powder? Maybe combining it with lactose powder?

@Chippy

6 minutes ago, Finni said:

ChatGPT is saying I can’t make my own capsule powder because I can’t mix it well enough

Does anyone have experience making their own compounded capsules out of medication powder? Maybe combining it with lactose powder?

@Chippy

You should be able to grind your tablet no problems at all. It’s been done many many times before.

@Chippy

I would like to grind several tablets together in a big batch that I can measure from so that I’m not as aware of how much is coming off each tablet

4 minutes ago, Finni said:

@Chippy

I would like to grind several tablets together in a big batch that I can measure from so that I’m not as aware of how much is coming off each tablet

Sounds reasonable to me. You can get some capsules online to put your dose into. You’ll do it right each time too.

13 minutes ago, Chippy said:

Sounds reasonable to me. You can get some capsules online to put your dose into. You’ll do it right each time too.

I have those already- 🙂

Just now, Finni said:

I have those already- 🙂

Perfect! You’re all set!

I stay so activated throughout the day that I don’t trust myself some of the time.

How many pills do people usually mix together at once and then separate into the correct amount in the capsule?

Know I need to weigh the capsule and have that be a part of the new weight.

I have little tiny spoons somewhere that I can fill the capsule with

Just now, Finni said:

I stay so activated throughout the day that I don’t trust myself some of the time.

How many pills do people usually mix together at once and then separate into the correct amount in the capsule?

Know I need to weigh the capsule and have that be a part of the new weight.

I have little tiny spoons somewhere that I can fill the capsule with

I don’t think I’ve ever seen a limit to it. I would suggest an air tight container for the powder if it spends time not in capsules. Then a normal pill bottle or similar for the capsules once filled.

4 minutes ago, Chippy said:

I don’t think I’ve ever seen a limit to it. I would suggest an air tight container for the powder if it spends time not in capsules. Then a normal pill bottle or similar for the capsules once filled.

I know I’m asking lots of questions…very cautious.

Is this method something that my body would have to get used to or is it just like taking tablet?

1 minute ago, Finni said:

I know I’m asking lots of questions…very cautious.

Is this method something that my body would have to get used to or is it just like taking tablet?

Everything can of course affect you in theory but I’d not worry about transitioning or anything.

😑

I was asking about number of tablets because my brain is hard wired to think of percentages and averages instead of just weight 🙃

1 minute ago, Finni said:

😑

I was asking about number of tablets because my brain is hard wired to think of percentages and averages instead of just weight 🙃

Got you. You still base your dose on the average weight of pill you’ve been using. It’s just rather than cutting a pill to weight you weigh that much powder each time (plus weight of capsule)

I think you know this. Just checking.