6 hours ago, Tracey said:

Just feel so unwell and can't function. Head is muddled, burning, aka agitation and the usual. Have the peak dose aggravation late morning onwards, still in it now at 2.45pm. Been getting it most days past weeks/ months.

Thanks @Catbird x

Thinking of you, Tracey 💗

Your system is trying to settle ☀️

11 hours ago, Tracey said:

Not much sleep last night and not sleeping as well as I did at my old home. Feeling so weak, shaky legs, digestion upset ( low belly discomfort, nausea or starving, bowels too lose in morning), awful head, anguish, feeling I can't go on like this.

But so trapped. What do I do? Frightened of hospital and the drugs they will give me. They don't understand sensitivity and autonomic nervous system dysfunction.

I had no idea the change of life would be such an assault on my nervous system. Feel like I have expected too much of myself and pushed myself too far.

I didn't realise I could get so much worse than I was.

Feeling so desperate today. Feel like I need total convalescence but I can't do that. I have to eat and feed and walk my 3 remaining fur babies.

I hurt my lower back lifting my old dog into car and I have to take mum to hospital for day surgery on a skin cancer on her nose today. In bed with hot water bottle now.

So scared. 🩷😢

I'm so sorry for your suffering @Tracey. I think it is really hard on our nervous system to be in a new place, around new people (even if they're family) and to have to establish new routines. I know I found this hard even before WD! But you will adjust and find stability, I'm so sure of it. Your strength has always shone through in your writing, and it's no different now. It might take a little while but easier times will come. 💜

12 hours ago, Tracey said:

Not much sleep last night and not sleeping as well as I did at my old home. Feeling so weak, shaky legs, digestion upset ( low belly discomfort, nausea or starving, bowels too lose in morning), awful head, anguish, feeling I can't go on like this.

But so trapped. What do I do? Frightened of hospital and the drugs they will give me. They don't understand sensitivity and autonomic nervous system dysfunction.

I had no idea the change of life would be such an assault on my nervous system. Feel like I have expected too much of myself and pushed myself too far.

I didn't realise I could get so much worse than I was.

Feeling so desperate today. Feel like I need total convalescence but I can't do that. I have to eat and feed and walk my 3 remaining fur babies.

I hurt my lower back lifting my old dog into car and I have to take mum to hospital for day surgery on a skin cancer on her nose today. In bed with hot water bottle now.

So scared. 🩷😢

Oh @Tracey life really isn't doing us any favors in this already unbelievably tough process, I'm so sorry.

I know how overwhelming it all feels but you have an incredible strong fighting spirit that can survive much more than wd mind would have you believe.

Just keep doing what you can and leave the rest for time which little by little will soften things.

Hang in there dear, better days will come.

lots of love to you! 🩷

@Tracey, I just saw your posts. I am so sorry you are having such a terrible stretch right now.

I think you've reached a point where there is simply too much coming at you at once, and it makes complete sense that you're feeling overwhelmed. You have been asking an enormous amount of yourself, and I don't think you realized how much the move would take out of you.

I wish I had something more useful to tell you than to just get through today. I know that probably sounds inadequate when you're feeling this bad, but sometimes that's all there is to do. You don't have to figure out the rest of your life from where you are today.

I'm thinking about you, Tracey, and sending you lots of love. ❤️

On 8/10/2026 at 2:25 AM, Tracey said:

Not much sleep last night and not sleeping as well as I did at my old home. Feeling so weak, shaky legs, digestion upset ( low belly discomfort, nausea or starving, bowels too lose in morning), awful head, anguish, feeling I can't go on like this.

But so trapped. What do I do? Frightened of hospital and the drugs they will give me. They don't understand sensitivity and autonomic nervous system dysfunction.

I had no idea the change of life would be such an assault on my nervous system. Feel like I have expected too much of myself and pushed myself too far.

I didn't realise I could get so much worse than I was.

Feeling so desperate today. Feel like I need total convalescence but I can't do that. I have to eat and feed and walk my 3 remaining fur babies.

I hurt my lower back lifting my old dog into car and I have to take mum to hospital for day surgery on a skin cancer on her nose today. In bed with hot water bottle now.

So scared. 🩷😢

Oh Tracey I am sorry things are so tough for you. You deserve so much more. I really believe this is a temporary upset/wave and given some more time to adjust to your new surroundings and allow your system to stablise and heal some more, things will look brighter for you soon. I think you are wise to sit it out and keep away from the hospital etc as you said, they won't understand and likley offer more drugs which as we know may well make this all worse. Sending some love and hope your way xxxxx

Hi Tracey, I am so sorry things have become so difficult for you. Certainly change can upset our poor nervous systems.

You have had so many wonderful messages and good advice, I hope they can give you some comfort.

The words we receive from our friends on this site are sometimes all we have.

Stay strong dear Tracey. According to the many success stories out there, this will all pass.

Think of you often.

Wombat

@Tracey where do I start, my heart is heavy knowing your going through this difficult time, I wish I could just sit and talk to you and say the brightest of the sun will shine upon you, and give you comfort and peace. I saw this and thought it might give you some sense of calm and peace.

"God says to you today ".

You have come so far, and I am proud of you. I see the battles you have won that no one else knows about. I see the strength you show every day, even when your heart is heavy. You are more loved than you can imagine and more valuable than you will ever understand. Don't compare your journey to others, because I have a unique plan just for you. What feels like a setback is actually preparing you for a greater comeback. I am turning your pain into purpose, your trials into triumph, and your tears into testimony. Keep your faith alive, because I am faithful. Keep your hope strong, because I am near. Keep your heart open, because I am working in ways you cannot see. I will never stop loving you, guiding you, and blessing you. You are not just getting bu, you are getting ready for everything I have in store for you . Trust me, I am making all things new in your life. Amen.❤️

Hi @Tracey , I just wanted to stop by and say hello and let you know I'm thinking about you. Please don't feel like you need to respond to this, or to any of us. Just take care of yourself and get through each moment as it comes.

I know the hell you're in, and I know how hard it can be when you can't see beyond the moment you're in. But there is a normal life waiting for you. For now, just keep getting through one moment at a time.

Thinking of you. ❤️

Thinking of you dear @Tracey . I hope and pray for you that you will be able to adjust soon and that you will find some inner peace and strength.

Hi Tracey, thinking of you and hoping you see some real improvement very soon.

Wombat

Edited August 16Aug 16 by Wombat

Thank you everyone, your support and kindness are just so important and really all I have.

I am really struggling and can't write much but I am so appreciative of you who give me such wise and hopeful comments.

I am at rock bottom, hanging on for dear life by a thread.

I have to find a way somehow.

Dear Tracey, do keep hanging on. We have to believe that relief will come. So many people before us have come out the other side.

I am thinking of you and praying for you.

Wombat

3 hours ago, Tracey said:

I am at rock bottom, hanging on for dear life by a thread.

I have to find a way somehow.

I have complete faith that you will climb up out of this hole @Tracey. Keeping you in my thoughts 💜.

So sorry to hear you’re still struggling @Tracey

Thanks dear friends.

Shocking day so activated ( nausea, burning, head pressure, feeling I could die or pass out ). Beyond exhausted. Burning chest, skin, urethra area. Agitated , highly irritable. Just too much change for my nervous system.

Brain barely able to function. Trying to hang on to that hope @Wombat . My pets need me more 😢 and my mother.

Feeling so ill I don't know what to do.

Should I updose? I have no idea what is going on. Weak dilute urine today so sodium probably down. Taking pinches of celtic salt . Probably too much fluid to try and comfort and soothe.

Bad all day and still bad.

Dear Tracey, I wish I knew what you should do. It is so awful.

Please tell me, do you get any windows at all? Even dirty windows. Are there any days with a little bit of relief?

When you updosed in March did that help at all?

I hope one of the mods will be able to help you with some advice.

Keep holding on. Distract as you are able. I know that is so hard to do when you are really bad.

Hoping for some relief for you soon.

Wombat

2 hours ago, Tracey said:

Feeling so ill I don't know what to do.

Should I updose? I have no idea what is going on. Weak dilute urine today so sodium probably down. Taking pinches of celtic salt . Probably too much fluid to try and comfort and soothe.

Bad all day and still bad.

Hey Tracey, I am very sorry things are so bad for you. When you tried to updose for one day before, it made things worse. I personally don't think that is a good move for you.

Unless you think you are having some dose related symptoms I think holding is still your best option.

I hope so badly for you to get a nice long window very soon, sending lots of hugs xxxxx

12 hours ago, Tracey said:

Feeling so ill I don't know what to do.

Should I updose? I have no idea what is going on. Weak dilute urine today so sodium probably down. Taking pinches of celtic salt . Probably too much fluid to try and comfort and soothe.

Bad all day and still bad.

I'm so sorry you're still in such a tough spot @Tracey it can take so long to stabilize but if you feel like you're just getting worse and completely dysfunctional, a tiny increase could be an option although you know there are no guarantees.

I really hope you can overcome this on your own but even if not there's no shame in that, I had to increase my dosage a bit a few days ago and I'm okay with that.

In the end it's your decision and there's no right or wrong here.

Wishing you much easier days very soon.

I am so sorry for your terrible suffering. All the stress of moving was an attack on your vulnerable nervous system. Time will heal. I believe strongly that you will get better soon. ❤️ sending you love and strength dear @Tracey

On 8/18/2026 at 4:33 AM, Fullhealing said:

I'm so sorry you're still in such a tough spot @Tracey it can take so long to stabilize but if you feel like you're just getting worse and completely dysfunctional, a tiny increase could be an option although you know there are no guarantees.

I really hope you can overcome this on your own but even if not there's no shame in that, I had to increase my dosage a bit a few days ago and I'm okay with that.

In the end it's your decision and there's no right or wrong here.

Wishing you much easier days very soon.

I am too scared @Fullhealing as when I updosed .4mg to 7.4mg I waa very activated and didn't sleep at all for a few nights. I only did it for one dose.

I wouldn't feel shame going up a bit but I am not sure what will happen.

@Wombat every second day I am a little better in a very dirty window. It can be easily upset though if a trigger happens.

Going off to sleep but restless and wake with dread.

I realise how I was starting to stabilise before I made the move and what an assault this has been. Simply too much for me.

I need some peace and hope as it is running me ragged. I feel like I am ruining my life.

@Chippy , I am not wanting to updose again but feel pretty lost. Can't believe I have gotten into this mess. Financial impact too. Just wish I had of realised sooner that 10% taper was too much.

Thanks @Nemina , I know you are also struggling. I have great faith in you xx Hugs from me xx

On 8/16/2026 at 11:53 PM, SarahMc said:

I have complete faith that you will climb up out of this hole @Tracey. Keeping you in my thoughts 💜.

Thanks @SarahMc xxxx Trying my hardest

5 minutes ago, Tracey said:

@Chippy , I am not wanting to updose again but feel pretty lost. Can't believe I have gotten into this mess. Financial impact too. Just wish I had of realised sooner that 10% taper was too much.

I’m sorry dear Tracey. I know it is awful what these drugs can do. Truly awful. We have faith in the body to settle things eventually. Nothing lasts forever and it’s actually good at healing just not very fast at times.

You have had so much to deal with too recently and I know that has had an impact.

Sending lots of healing love. ❤️

@Tracey just checking. You just said you updosed by 0.4mg and your footer says 0.6mg. I was under the impression that it was 0.2mg from our discussions at the time?

8 minutes ago, Chippy said:

@Tracey just checking. You just said you updosed by 0.4mg and your footer says 0.6mg. I was under the impression that it was 0.2mg from our discussions at the time?

Gee I can't remember. You gave me two choices at the time that were .1 mg difference for memory. I went with the lesser one.Think I made a mistake with my signature . Think it was only .2 mg .

Edited August 19Aug 19 by Tracey