25 minutes ago, NT1100B said:

Sounds good @Chippy Keep plodding bud.

Take care,        B.🤞

Will do B

Morning @Chippy how's it going mate? I hope you are still doing OK and I hope 

your sleep is getting even better, keep plodding Bud.🤞

Take care,        B.

26 minutes ago, NT1100B said:

Morning @Chippy how's it going mate? I hope you are still doing OK and I hope 

your sleep is getting even better, keep plodding Bud.🤞

Take care,        B.

Morning mate

 

Thanks B appreciate it. Slept alright. About 6.5/7 woke up once but ignored the call for nature and sent back to sleep. 
Feel a bit rested. Heads no great right this second. Frustrating. 
 

Yesterday wasn’t great but not the worse. Head pressure was the issue. Got a big worse as the day went on. Felt fairly fed up by the evening. Ground hog day really. It’s all good. Time and patience gets the job done. 
 

Chippy

3 minutes ago, Chippy said:

Ground hog day really. It’s all good. Time and patience gets the job done. 
 

Chippy

Sorry @Chippy still the last dregs of pwd dragging on by the sound of it. You are getting there mate.

Keep that gentle plodding Bud.🤞

Take care,         B.

6 minutes ago, NT1100B said:

Sorry @Chippy still the last dregs of pwd dragging on by the sound of it. You are getting there mate.

Keep that gentle plodding Bud.🤞

Take care,         B.

Cheers bud in sure I will. These things can take a long time as we know. If the head pressure would go I’d be not too bad in general. 

Morning @Chippy how's it going mate? I hope you are getting rid of the remnants of your pwd symptoms.

Time as we know is the one, so just keep that gentle plodding.

Take care,         B.🤞

2 minutes ago, NT1100B said:

Morning @Chippy how's it going mate? I hope you are getting rid of the remnants of your pwd symptoms.

Time as we know is the one, so just keep that gentle plodding.

Take care,         B.🤞

Morning mate

 

I was starting to worry about you!

 

I slept good. 6+ hours straight through. Quick pee and then dose slept for 2 hours. Broken but appreciative of it. Getting there with sleep. 😴 

heads stinging a little. Food and water hopefully will help. 
 

Yesterday okish. 7/10. Felt pretty rough on my walk the cold and wind was horrible on my face and head. 
in the house was better. Not great head still off but not like it can be. 
 

crabbing my way to victory. 
 

Chippy

10 minutes ago, Chippy said:

crabbing my way to victory. 
 

Chippy

Morning @Chippy That sound GOOD, VICTORY will be yours mate, that I am 100% certain.🎉

So yes you are getting shot of the remnants now, keep gently plodding bud.👍

Take care,        B.🤞

Just now, NT1100B said:

Morning @Chippy That sound GOOD, VICTORY will be yours mate, that I am 100% certain.🎉

So yes you are getting shot of the remnants now, keep gently plodding bud.👍

Take care,        B.🤞

Hope so mate. It’s that head pressure. It is pretty nasty still. Time time time. 

Chippy. I have thought I’ve heard it stated here, by who I dont recall, it can take  some folks with unusual circumstances  taking exceedingly longggg times to stabilize when they cut their dose. Do you recall the lengths of time for some of those folks. I’m thinking given what I’m experiencing and after talking with Horowitz I might be one of those people where each cut rocks my boat. 

Morning @Chippy How's it going mate? I know you will be fast asleep now 2.40am but I

hope you are still on the up, keep plodding my good man.

Take care,       B.🤞

1 hour ago, NT1100B said:

Morning @Chippy How's it going mate? I know you will be fast asleep now 2.40am but I

hope you are still on the up, keep plodding my good man.

Take care,       B.🤞

Morning mate

 

Slept ok. 5.5-6 straight. Nothing after at all so I’m up a bit earlier than usual. Not feeling too clever but I’m glad the pattern continues…..

 

Yesterday felt great in the morning really rested. But the burning brain returned pretty quickly. It’s a really sticky symptom this and nothing seems to help it. Even 8 hours sleep apparently. Frustrating. Lots more time needed I suspect. Gotta keep that acceptance flowing. 
 

Chippy

22 hours ago, Chippy said:

crabbing my way to victory. 

Hahaha! 🦀 Love this @Chippy! I love crabs dipped in a little butter with a side of Caesar salad and sourdough bread...🦀 Finally caught up on your page. You are getting closer and closer. Darn burning brain, why it’s still hanging around just to be annoying who knows? Sorry about your cold weather too...that does make walks more challenging. I'd send you some sunshine, but we rain today too! Cheers to victory, which will happen for you!😊

10 hours ago, Pokey449 said:

Chippy. I have thought I’ve heard it stated here, by who I dont recall, it can take  some folks with unusual circumstances  taking exceedingly longggg times to stabilize when they cut their dose. Do you recall the lengths of time for some of those folks. I’m thinking given what I’m experiencing and after talking with Horowitz I might be one of those people where each cut rocks my boat. 

Hey Pokey. There’s no set timeline for this. I’ve seen some take many months  to stabilise especially if their nervous system is very dysregulated.

3 minutes ago, HopePerseveres2.0 said:

Hahaha! 🦀 Love this @Chippy! I love crabs dipped in a little butter with a side of Caesar salad and sourdough bread...🦀 Finally caught up on your page. You are getting closer and closer. Darn burning brain, why it’s still hanging around just to be annoying who knows? Sorry about your cold weather too...that does make walks more challenging. I'd send you some sunshine, but we rain today too! Cheers to victory, which will happen for you!😊

Haha thanks @HopePerseveres2.0 I’m a vegetarian so not for me! 😂

 

Thanks yeah creeping towards victory but doesn’t feel like it sometimes. BB is a sticky little blighter that’s for sure. 
 

Hope you’re going ok? Xxxx

18 minutes ago, Chippy said:

Frustrating. Lots more time needed I suspect. Gotta keep that acceptance flowing. 
 

Chippy

Not good @Chippy but loke you say, time ,time, and more time, keep plodding Bud.

Take care,       B.

20 minutes ago, Chippy said:

I’m a vegetarian so not for me! 😂

Guess it's just the salad for you then!

20 minutes ago, Chippy said:

Hope you’re going ok?

Lots of waves and windows periods, but riding through OK!🏄🏼‍♀️👍

12 minutes ago, HopePerseveres2.0 said:

Lots of waves and windows periods, but riding through OK!🏄🏼‍♀️👍

Typical isn’t it! But good to hear. I’ll catch up with your update later. X

Morning @Chippy how's it going this morning mate? I hope you are still doing good.

Keep plodding and take care,       B.👍

6 minutes ago, NT1100B said:

Morning @Chippy how's it going this morning mate? I hope you are still doing good.

Keep plodding and take care,       B.👍

Morning mate

 

Slept ok again 6 hours. Got a tad more on an off after I think. So definitely sleep has now changed to this routine. Odd isn’t it after all this time. Healing happens. Could do with a bit more to be normal again but happy with the change. Heads burning right now. I don’t judge until later though once I’ve woken properly and eaten etc

 

Yesterday wasn’t good or bad. Felt a tatty 6/10. Head wasn’t burning but not perfect either. Think I felt a bit tired all day. It seems the burning brain is more likely when I feel rested. It’s always been like this. I don’t know why. 
 

Glad my sleep is improving not glad my head burns. 
 

Chippy

13 minutes ago, Chippy said:

Glad my sleep is improving not glad my head burns. 
 

Chippy

Not good @Chippy Burning brain I have seen on many threads, so a common symptom,

one I have 🤞 escaped, I just get headaches that won't shift, but not burning. I imagine it will

pass with more time Chippy, but boy does this S**T drag on🤬  Keep plodding bud.

Take care,       B.🤞

Just now, NT1100B said:

Not good @Chippy Burning brain I have seen on many threads, so a common symptom,

one I have 🤞 escaped, I just get headaches that won't shift, but not burning. I imagine it will

pass with more time Chippy, but boy does this S**T drag on🤬  Keep plodding bud.

Take care,       B.🤞

Thanks for the reassurance mate it’s appreciated. I’ve seen things improve so I know this will too. Feels like like I’ve been beaten up sometimes. Like a physical injury. Like inflammation or something. It’s not good. But I trust it will heal. 

Morning @Chippy How's it going mate? I hope you are getting rid of the burning brain symptom.

Time will see it gone Bud, so here's hoping that day is getting nearer fast. Keep plodding Bud.

Take care,       B.🤞

1 hour ago, NT1100B said:

Morning @Chippy How's it going mate? I hope you are getting rid of the burning brain symptom.

Time will see it gone Bud, so here's hoping that day is getting nearer fast. Keep plodding Bud.

Take care,       B.🤞

Morning mate 

 

Not such a good sleep last night. Hypnic jerks were back making sleep difficult. Was ok got to sleep in the end. Then I woke early. Maybe 4 hours but light somehow. Bathroom visit. Then 3 broken grateful hours after. So not awful but not good. Feeling it this morning. 
 

Yesterday felt pretty good. Only major thing was the burning brain just up and down all day. Apart from that I was really decent. 
 

Time time time bud

Morning @Chippy Sorry about yesterday mate, sounds like another wave. They just keep on coming,

Hopefully you will soon lift out of it and it will be short lived,🤞 wishing you the best mate.

Take care,       B.