Update 9:30pm

Nights continue to be a big challenge, sleep is poor mostly comes with sweats, dry mouth, nightmares and endless awakenings, 3-6 hours in total.

Yesterday was terrible, one big flare-up throughout the day, burning, tight muscles, tinnitus, on edge, fear, restlessness, poor digestion, headaches from the beginning of the day, improved towards the evening, the whole system was overstimulated, I tried iron + c but it's early days.

Now, same level as yesterday.

Overall, worsening, the days become one big mass of mental and physical symptoms almost non-stop.

6 hours ago, namastejen1 said:

How are you FullHealing? I am eager to be back on after being sick for a couple of weeks. Still recovering but getting better each day. I hope that tomorrow is a great day for you! Prayers/healing thoughts, my friend.

Thanks for stopping by @namastejen1 appreciate it!

not going well here, things it seems slowly and surely getting worse! all in hope for some relief soon.

Glad you are feeling better.

 

Edited March 14Mar 14 by Fullhealing

2 hours ago, Fullhealing said:

Overall, worsening, the days become one big mass of mental and physical symptoms almost non-stop.

@Fullhealing I am so sorry you at in this state. 

 

Below is what have helped me along the way:

 

I kept track of, what I was eating. In a list with date time and what I ate, to see if there wa a pattern.

 

I did for a while, and now I know which food and spices, I have to keep away from. The symptoms might flair up right away, but also 2-3 days later. And it took some time, when I ate something my brain and body didn´t agree with, before my nervous system settled again. Perhaps you already did this, but just in case...

 

Keep up the good work with accepting.

For me it helped a lot when learning of The Polyvagal Theory. It gave me a neuro-biology understanding of what is going on in the brain, and helped me to find a new way of thinking of what and why, we get in these states.

 

Switching to another way of naming the symptoms gave me a pause to switz perspective and to know, that the brain is reacting to the WD, as if there is a tiger coming. There are no tiger. Calming the sympathicus nerve is the way to go. I fund digging a layer deeper and finding another language gave me some peace.

 

I have a hard time to find the right words, but there are an easy to read edition, if you would wish to explore this.

 

I hope and pray for you, that you soon will have a window and will find ways to soothing yourself. I am glad that you keep posting.

Please tell me if all my suggestions are too much. (I am working on my urge to find solutions. I guess, I was born like this, and I freely give away advises even when not asked to) ha ha..

This will pass....

Lots of caring thoughts 🙏💕

 

Edited March 14Mar 14 by Haa

4 hours ago, Fullhealing said:

Update 9:30pm

Nights continue to be a big challenge, sleep is poor mostly comes with sweats, dry mouth, nightmares and endless awakenings, 3-6 hours in total.

Yesterday was terrible, one big flare-up throughout the day, burning, tight muscles, tinnitus, on edge, fear, restlessness, poor digestion, headaches from the beginning of the day, improved towards the evening, the whole system was overstimulated, I tried iron + c but it's early days.

Now, same level as yesterday.

Overall, worsening, the days become one big mass of mental and physical symptoms almost non-stop.

I'm sorry to hear this @Fullhealing...your body is actually healing....keep going.

 

One good sign is that your afternoons gets little better.    I had my symptoms all day long.  Then, it gradually improved by the afternoons.  Now, on bad days, it only last few hours in the mornings...

 

You will get there....keep holding...you are strong.... 🤗

Thanks for the tips and the kind words @Haa & @Raymond appreciate it a lot.

Stay strong and well both.

14 hours ago, Fullhealing said:

Update 9:30pm

Nights continue to be a big challenge, sleep is poor mostly comes with sweats, dry mouth, nightmares and endless awakenings, 3-6 hours in total.

Yesterday was terrible, one big flare-up throughout the day, burning, tight muscles, tinnitus, on edge, fear, restlessness, poor digestion, headaches from the beginning of the day, improved towards the evening, the whole system was overstimulated, I tried iron + c but it's early days.

Now, same level as yesterday.

Overall, worsening, the days become one big mass of mental and physical symptoms almost non-stop.

Continued update 23:30pm

more or less as yesterday, dominant ones, severe physical and mental restlessness, fueled body and a catastrophic mind, feels like akathisia more than anything, I've been there already, it will pass.

headache again in the morning, subsided towards the afternoon.

managed to get about two hours of sweaty sleep, woke up not long ago.

At late noon iron+c quarter of the recommended dose, no worsening was felt except perhaps a slight increase in tinnitus and head pressure.

a bit more bearable atm.

Edited March 14Mar 14 by Fullhealing

5 hours ago, Fullhealing said:

Continued update 23:30pm

more or less as yesterday, dominant ones, severe physical and mental restlessness, fueled body and a catastrophic mind, feels like akathisia more than anything, I've been there already, it will pass.

headache again in the morning, subsided towards the afternoon.

managed to get about two hours of sweaty sleep, woke up not long ago.

At late noon iron+c quarter of the recommended dose, no worsening was felt except perhaps a slight increase in tinnitus and head pressure.

a bit more bearable atm.

Keep going....I have had those symptoms and they will decrease and some will fade away.   The headache is one symptom that I had for two months until it little by little lower in intensity.  It started to appears in the afternoon hours for an hour.  Then, I had it for a day or two and now it's being like two weeks with no headache....

 

Hanging there....this wave will pass...

On 3/14/2026 at 11:53 PM, Fullhealing said:

Continued update 23:30pm

more or less as yesterday, dominant ones, severe physical and mental restlessness, fueled body and a catastrophic mind, feels like akathisia more than anything, I've been there already, it will pass.

headache again in the morning, subsided towards the afternoon.

Update 23:00pm

Nights continue to be challenged with either external or internal disturbances so very little sleep however I do manage to catch up a bit during the day which keeps my head above water.

Until this morning I was still in a continuous hellish wave/aka as described above but it improved throughout the day by about 30%, far from being good, but any relief is a blessing.

Currently my body is relatively calm but mind much less, still agitated, brain fog that started strongly yesterday is still very present.

Edited March 16Mar 16 by Fullhealing

@Fullhealing I like you are consistent in writing up-dates. Even though the windows and waves is the only constant, from outside it looks like there is some improvement. Only you can tell for real… You keep up holding on and you celebrate the small changes for the better. You are doing amazing. I cheer on you. 
I hope you’ll have a good nights sleep.

🙏💕 

34 minutes ago, Haa said:

@Fullhealing I like you are consistent in writing up-dates. Even though the windows and waves is the only constant, from outside it looks like there is some improvement. Only you can tell for real… You keep up holding on and you celebrate the small changes for the better. You are doing amazing. I cheer on you. 
I hope you’ll have a good nights sleep.

🙏💕 

Dear @Haa thank you for the positive boost, I really appreciate your warm support.

I just hope my sleep improves, a little longer with better quality will make a big difference.

How are you holding up? I really hope you are still in a soft spot 💞 good night sleep well!

1 hour ago, Fullhealing said:

Update 23:00pm

Nights continue to be challenged with either external or internal disturbances so very little sleep however I do manage to catch up a bit during the day which keeps my head above water.

Until this morning I was still in a continuous hellish wave/aka as described above but it improved throughout the day by about 30%, far from being good, but any relief is a blessing.

Currently my body is relatively calm but mind much less, still agitated, brain fog that started strongly yesterday is still very present.

You are doing great.....keep going...things will improve a lot more....

12 minutes ago, Raymond said:

You are doing great.....keep going...things will improve a lot more....

Thank you @Raymond at one pace or another for all of us 🙏 

7 hours ago, Fullhealing said:

Update 23:00pm

Nights continue to be challenged with either external or internal disturbances so very little sleep however I do manage to catch up a bit during the day which keeps my head above water.

Until this morning I was still in a continuous hellish wave/aka as described above but it improved throughout the day by about 30%, far from being good, but any relief is a blessing.

Currently my body is relatively calm but mind much less, still agitated, brain fog that started strongly yesterday is still very present.

Thinking of you @Fullhealing

1 hour ago, Chippy said:

Thinking of you @Fullhealing

Thank you @Chippy always here for support! much appreciated 🙏

Hopefully you are doing ok atm and keeping your great power on!

Edited March 17Mar 17 by Fullhealing

24 minutes ago, Fullhealing said:

Thank you @Chippy always here for support! much appreciated 🙏

Hopefully you are doing ok atm and keeping your great power on!

Plodding on as ever! Xxx

18 hours ago, Fullhealing said:

Update 23:00pm

Nights continue to be challenged with either external or internal disturbances so very little sleep however I do manage to catch up a bit during the day which keeps my head above water.

Until this morning I was still in a continuous hellish wave/aka as described above but it improved throughout the day by about 30%, far from being good, but any relief is a blessing.

Currently my body is relatively calm but mind much less, still agitated, brain fog that started strongly yesterday is still very present.

Short update 5:30pm

Disturbed night again so sleep was completely broken however I managed to fall asleep again and slept in total almost 9 hours!

My mood was relatively fine throughout the day with an improvement from yesterday, still is, my body is also relatively calm, there are the usual things like bad digestion, allergies, tinnitus, etc. but I am not in a flare-up state which is great.

Grateful for every little improvement.

@Fullhealing So good to hear. 

5 hours ago, Fullhealing said:

Short update 5:30pm

Disturbed night again so sleep was completely broken however I managed to fall asleep again and slept in total almost 9 hours!

My mood was relatively fine throughout the day with an improvement from yesterday, still is, my body is also relatively calm, there are the usual things like bad digestion, allergies, tinnitus, etc. but I am not in a flare-up state which is great.

Grateful for every little improvement.

Glad to hear things are improving @Fullhealing

13 hours ago, Fullhealing said:

slept in total almost 9 hours!

😀 amazing!

 

13 hours ago, Fullhealing said:

Grateful for every little improvement.

Long may it continue! Xxx

2 minutes ago, Chippy said:

😀 amazing!

 

Long may it continue! Xxx

May indeed 🙂 thank you! @Chippy

Edited March 18Mar 18 by Fullhealing

Update 3.00am

Another broken night as it seem, fell asleep around 10pm until midnight when we were jumped to the shelter and awake since then.

The course of the day was very exhausting, although there were no physical flare-ups, greatful for that, the body was extremely tired and on the verge of collapse.

I managed to get to work for a very short time just to release some pressure there and immediately home again to rest.

The mood was mostly bearable although there were dips of depression, fears and all the familiar withdrawal symptoms, lack of motivation and brain fog were, and still very strong, big desire is to do a lot of nothing.

allergy attacks also hit hard today, digestion was a tad better.

I guess as long as it's bearable it's relatively positive but it's still so far from good.. isolation is killing, I miss social life, the excitement of seeing people and generally the excitement of a new day, feeling alive and not just surviving but better to accept and not fight, definitely a real challenge.

To sum it up, much better than two days ago but still lots of room for improvement.

 

slowly and carefully we moving forward with the hope for better days to come.

 

Note - tried iron+c for a few days but decided to stop and not take anything unless I'm in a significant deficiency which im not.

Edited March 19Mar 19 by Fullhealing

Glad you can see some improvement there @Fullhealing as you say long way from living but your acceptance is incredible and your best most powerful tool in all this. Thinking of you always. 

3 hours ago, Chippy said:

Glad you can see some improvement there @Fullhealing as you say long way from living but your acceptance is incredible and your best most powerful tool in all this. Thinking of you always. 

Thank you @Chippy currently a flare up but oh well.. this too shall pass..

Hope you are holding up well today. power on!

17 minutes ago, Fullhealing said:

power on!

That is what we have to do! xxx

Hey @Fullhealing, just dropping by to say hello on your thread!
 

I wanted to read your SA thread, but I cannot log into the old forum. It was the same yesterday. But I’m going to do it, as soon as it reopens or as I find out what my mistake is.

 

I hope that your flareup will pass soon!

Take very good care.