29 minutes ago, Fullhealing said:

Update 10:20pm

Night-short interrupted sleep, external noises, total of 3-4 hours.

Most of the day went well considering the night, I was quite energetic, mood was relatively good, worked a few hours, some humor with the employees, not on edge, gloomy, I missed my cheerful self, it was nice.

Evening, things changed mainly physically, body suddenly got extreme fatigue to the point of difficulty standing on its feet, added with joint/muscle pain, wave of about two hours, as for now it's 70% better.

Also during the day, waves of allergies including poor digestion and tinnitus but that's pretty much the norm.

Currently, mood is still fine, overall I'm improving, greatful.

 

 

very glad to hear that youre improving and its good that most of the day went well. to me that sounds like you are definitely getting better. you got this!

1 hour ago, Some0n3 said:

very glad to hear that youre improving and its good that most of the day went well. to me that sounds like you are definitely getting better. you got this!

Thank you for this nice comment @Some0n3 appreciate it.

Edited March 24Mar 24 by Fullhealing

@Fullhealing

So good to hear that you are feeling somewhat better.🤞🤞Let it lasts and improve. I cheer on you, and I know you and all of us will succeed.

Im am just slightly affected after my last reduction. (Mostly I am tired).  I’ll wait at least week, before I decide if I keep holding og reduce another 1mg. 
I am so grateful 🙏💕
 

@Fullhealing Slow and steady + patience = stability.  Happy for you 🤗

8 hours ago, Fullhealing said:

Update 10:20pm

Night-short interrupted sleep, external noises, total of 3-4 hours.

Most of the day went well considering the night, I was quite energetic, mood was relatively good, worked a few hours, some humor with the employees, not on edge, gloomy, I missed my cheerful self, it was nice.

Evening, things changed mainly physically, body suddenly got extreme fatigue to the point of difficulty standing on its feet, added with joint/muscle pain, wave of about two hours, as for now it's 70% better.

Also during the day, waves of allergies including poor digestion and tinnitus but that's pretty much the norm.

Currently, mood is still fine, overall I'm improving, greatful.

 

 

Sorry about the short sleep, you do so well with all this. Quite the warrior and an example for all of strength and courage. 
Glad things are getting better. Got it crossed this continues in the coming days. Xxxx

10 hours ago, Haa said:

@Fullhealing

So good to hear that you are feeling somewhat better.🤞🤞Let it lasts and improve. I cheer on you, and I know you and all of us will succeed.

Im am just slightly affected after my last reduction. (Mostly I am tired).  I’ll wait at least week, before I decide if I keep holding og reduce another 1mg. 
I am so grateful 🙏💕
 

Thank you @Haa always so kind!

Yes, we will succeed, that's the spirit! let's hold on that.

Very pleased to hear that the last reduction is going relatively smoothly for you, I hope and pray the next will go in the same line 💞 keep up your great work.

9 hours ago, Catbird said:

@Fullhealing Slow and steady + patience = stability.  Happy for you 🤗

Thank you @Catbird I saw in other posts that you're also being challenged recently, I'm sorry! so tough but we'll get through this, there is an end to all of this.

Edited March 25Mar 25 by Fullhealing

5 hours ago, Chippy said:

Sorry about the short sleep, you do so well with all this. Quite the warrior and an example for all of strength and courage. 
Glad things are getting better. Got it crossed this continues in the coming days. Xxxx

Kind and lovely as always @Chippy thank you!! how things are going for you? hope you are doing relatively okay, only the best for you.

Edited March 25Mar 25 by Fullhealing

Just now, Fullhealing said:

Kind and lovely as always @Chippythank you!! how things are going for you? hope you are doing relatively okay, only the best for you.

Plodding along. Bit of a wave this last few days that seems to be resolving. Each day has its struggles still but I’ll get there eventually. 

2 minutes ago, Chippy said:

Plodding along. Bit of a wave this last few days that seems to be resolving. Each day has its struggles still but I’ll get there eventually. 

I'm sorry to hear that but glad it subsiding! stay strong and resilient, it will indeed end for all of us at some point.

Really does seem your baseline is improving ,I'm so pleased for you . To have that little bit of yourself back if only for a short while is the best feeling ever . I've noticed when I've had a glimpse of that I am so utterly grateful for the smallest thing and it feels wonderful to just be alive . Sorry to hear about your evening ,I've heard for some people not all that they can have either bad mornings or evenings depending on what time they take their tablets .Wishing you a peaceful content future 🤗

1 hour ago, Fullhealing said:

Thank you @Catbird I saw in other posts that you're also being challenged recently, I'm sorry! so tough but we'll get through this, there is an end to all of this.

Yes @Fullhealing It's been over 5 weeks since my last decrease of 16mcg and I'm still adrenalised everyday - though not all the time. I've hit a wall of dysautonomia. My BP is all over the place as is my heart rate, even doing a few weights will put me into tachycardia, other days I can do a 4km beach walk. Just taking every day as it comes 💕

48 minutes ago, Beehive said:

Really does seem your baseline is improving ,I'm so pleased for you . To have that little bit of yourself back if only for a short while is the best feeling ever . I've noticed when I've had a glimpse of that I am so utterly grateful for the smallest thing and it feels wonderful to just be alive . Sorry to hear about your evening ,I've heard for some people not all that they can have either bad mornings or evenings depending on what time they take their tablets .Wishing you a peaceful content future 🤗

Thank you so much @Beehive I do feel that my base is slowly strengthening, however the unexpected fluctuations that sit on it sometimes hit really really hard but it is to be expected, such a bumpy journey! and YES, we should continue to do our best to be grateful for every small improvement since it is easy to sink into suffering, in time it will grow for all of us, I'm sure of that.

I hope you are having a relatively good day and your body is calmer than yesterday ✨✨

Edited March 25Mar 25 by Fullhealing

On 3/8/2026 at 5:44 PM, Fullhealing said:

Thanks a lot @Finni 💞 small important as for now, im thankful.

Regarding nicotine, it's been wild in the last few months, I've never smoked so heavily and it's at a suffocating level!!

I'm trying to figure out if it's related to increased compulsivity since the last cuts, I've seen a lot of people describe all kinds of obsessive behaviors like this during withdrawal..

I've managed to cut back in the last couple of days and my body is thanking me so I'll try to keep it up.

make sure to take it easy, and try to focus on the things that bring you joy and calmness.

and remember to remember, that it's just your nervous system unstabilized, accept the sickness and let the body go through what it needs to, don't rush into negativity stories in your head as much as you can.

4 minutes ago, Lighty said:

make sure to take it easy, and try to focus on the things that bring you joy and calmness.

and remember to remember, that it's just your nervous system unstabilized, accept the sickness and let the body go through what it needs to, don't rush into negativity stories in your head as much as you can.

Definitely work in progress @Lighty thank you!

Edited March 25Mar 25 by Fullhealing

36 minutes ago, Catbird said:

Yes @Fullhealing It's been over 5 weeks since my last decrease of 16mcg and I'm still adrenalised everyday - though not all the time. I've hit a wall of dysautonomia. My BP is all over the place as is my heart rate, even doing a few weights will put me into tachycardia, other days I can do a 4km beach walk. Just taking every day as it comes 💕

So sorry to hear that @Catbird yet glad that you are having good days as well, definitely an encouraging sign.

I'm sure your system will regulate itself from the recent reduction, just a little longer.

Hang in there, you're doing great considering all of thet 💞

@FullhealingFullhealing It certainly is a bumpy ride ,it's all that building work going on .The foundations (baseline) start pf weak and crumbly so anything built on top doesn't last long and has to be rebuilt .Eventually the foundations get shored up and underpinned even more so eventually the building work on top is more stable ,so no falling down and rebuilding as much ( symptons reappearing ) until we have such a solid foundation the building stays where it is and lasts mamy years . Keep going you are close to a solid foundation and your building will be very strong 😊

update 2:30pm

Crushing neck and head pain since the beginning of the morning, sleep was one of the worst with interruptions along the way so that must have been the catalyst for it, tried to pull without painkillers as I hate putting more chemicals into the body but I give in, it was truly one of the strongest I've had so far and at an unbearable level, now half an hour later the relief begins, thank God and gratitude to painkillers inventor!

However, the mind is still relatively calm, this is a huge positive thing that should not be ignored.

Any symptom that comes at this stage should already be expected, but unfortunately unwanted.. oh well, we continue to move forward..

Edited March 25Mar 25 by Fullhealing

3 minutes ago, Fullhealing said:

update 2:30pm

Crushing neck and head pain since the beginning of the morning, sleep was one of the worst with interruptions along the way so that must have been the catalyst for it, tried to pull without painkillers as I hate putting more chemicals into the body but I give in, it was truly one of the strongest I've had so far and at an unbearable level, now half an hour later the relief begins, thank God and gratitude to the inventor of painkillers!

However, the mind is still relatively calm, this is a huge positive thing that should not be ignored.

Any symptom that comes at this stage should already be expected, but unfortunately unwanted.. oh well, we continue to move forward..

I'm sorry you are dealing with those kind of symptoms, not fun for sure.

If you are dealing with pains and want to try maybe something else, for me sometimes very light chamomile tea helps with head/body pain.

I put only one chamomile flower in a strainer with hot water for 5 minutes and then drink, if you can tolerate chamomile/small amounts of it, maybe it could help out at times.

8 minutes ago, Lighty said:

I'm sorry you are dealing with those kind of symptoms, not fun for sure.

If you are dealing with pains and want to try maybe something else, for me sometimes very light chamomile tea helps with head/body pain.

I put only one chamomile flower in a strainer with hot water for 5 minutes and then drink, if you can tolerate chamomile/small amounts of it, maybe it could help out at times.

Thanks for the advice @Lighty though I'm not a tea type in any way, don't like it (well maybe when I have the flu and even then barely) I might give it a go, I've heard good things about it although there's no telling how my body will react now but I won't know if I don't try 🙂

1 minute ago, Fullhealing said:

there's no telling how my body will react now but I won't know if I don't try 🙂

it's always best to start low and slow, get whole dried chamomile flowers and start with a very tiny amount.

I'm personally kind of sensitive to chamomile, but in time of immense pain that interrupts my sleep, it can help my pain calm down after 30-60 minutes and at the end go to sleep, which brings more positives than negatives.

it may also help with your sleep issues.

29 minutes ago, Fullhealing said:

update 2:30pm

Crushing neck and head pain since the beginning of the morning, sleep was one of the worst with interruptions along the way so that must have been the catalyst for it, tried to pull without painkillers as I hate putting more chemicals into the body but I give in, it was truly one of the strongest I've had so far and at an unbearable level, now half an hour later the relief begins, thank God and gratitude to painkillers inventor!

However, the mind is still relatively calm, this is a huge positive thing that should not be ignored.

Any symptom that comes at this stage should already be expected, but unfortunately unwanted.. oh well, we continue to move forward..

I have had the same symptoms as you around month 12....the head pain and kneck pain was terrible...I was experiencing it in the afternoon hours.  Then, it faded by the late afternoon hours.  I had it for like two much daily until I started to experience it once every other day until it completely gone.   It's being a month now with no pain....

 

You are doing great....it seems your body is finding stability.

 

I have refused to take any medications for pain...I just let it be.....

14 minutes ago, Raymond said:

I have had the same symptoms as you around month 12....the head pain and kneck pain was terrible...I was experiencing it in the afternoon hours.  Then, it faded by the late afternoon hours.  I had it for like two much daily until I started to experience it once every other day until it completely gone.   It's being a month now with no pain....

 

You are doing great....it seems your body is finding stability.

 

I have refused to take any medications for pain...I just let it be.....

Two whole months, Goddess, that's terrible! I usually tolerate pain pretty well but this was on a different level.. Anyway, I'm glad it's behind you.

I know it sound be expected especially after a reduction, so I need to prepare myself as well as light painkillers if it's really unbearable as today.

Edited March 25Mar 25 by Fullhealing

8 minutes ago, Fullhealing said:

Two whole months, Goddess, that's terrible! I usually tolerate pain pretty well but this was on a different level.. Anyway, I'm glad it's behind you.

I know it sound be expected especially after a reduction, so I need to prepare myself as well as light painkillers if it's really unbearable as today.

Yes, two long months, but no more pain so far.....

 

The head pain was weird too.  It was like on the left side back of head. 

Sorry to hear this I've had this myself .Is it actually pain or the muscles cramping up and going really tight ..if its the latter have you tried taking Magnesium Citrate or Glycinate I know you can't do Epsom Salt Baths but maybe you could get your Magnesium this way well.known for uncramping tight muscles ..