2 minutes ago, Chippy said:

You were right. Just a bit of time is all it takes and the answer will speak to you.
 

Chippy 

Thanks @Chippy much appreciated, its just the wave mind can't see any answers yet. PWD renders one

useless to conduct business in any way, hell we are struggling to just keep our bodily functions under control

never mind anything else, we are RELYING on an incredibly elusive window to perform anything rational. So

yes it's basically down to pure LUCK at the moment mate.🤞🤔

Take care,         B.🤞

3 minutes ago, NT1100B said:

Thanks @Chippy much appreciated, its just the wave mind can't see any answers yet. PWD renders one

useless to conduct business in any way, hell we are struggling to just keep our bodily functions under control

never mind anything else, we are RELYING on an incredibly elusive window to perform anything rational. So

yes it's basically down to pure LUCK at the moment mate.🤞🤔

Take care,         B.🤞

Got it crossed you get a solution shortly. 💪👍

Hi @NT1100B

sorry about the car, financially things are not great in WD. I’m sorry. 
I also have terrible morning corisol at the moment, ongoing in this wave.

its HORRID.

mine in a wave often doesn’t pass to be honest it just stays around all day.

its my main Symtom.

and it sucks. Chemical anxiety is 💩 

 

hope today lifts for you. My brief window Friday evening disappeared and back in a wave yesterday.

 

onwards and upwards! 
rosie 

4 minutes ago, Chippy said:

Got it crossed you get a solution shortly. 💪👍

Cheers @Chippy I am praying.        B.🤞

1 minute ago, Its-me-Rosie said:

hope today lifts for you. My brief window Friday evening disappeared and back in a wave yesterday.

 

onwards and upwards! 
rosie 

Hi @Its-me-Rosie thanks and very much appreciated. I am very sorry you are suffering  the same Rosie, you are

right it's horrible beyond belief, early awakenings are horrific, and if we try to sleep again it get's even worse, we

truly are in a living hell, I am sending you all the spiritual strength I can Rosie, I think there is a select few who are 

like us in the more severe form, our brains have been ultra sensitized. BUT we WILL get though it, we will persevere

with ALL OUR MIGHT.    Keep gently plodding Rosie.🤞

Take great care,             B. 🙏🙏🙏🙏🤞🌷

Morning B. I know your PWD is getting damned old. It’s exhausting mentally and physically for sure. Then there’s all of life’s little nagging problems to solve which on a normal day would be not that big of a deal. But when one is so worn and exhausted the simplest mole hill seems like climbing Mt. Everest. But I guess all one can do is take it one minute, hour, day at a time. I wish I had a magic wand I could share. Wishing you the best. 

Edited February 8Feb 8 by Pokey449

Glad to see you are getting better periods b, have been following your thread on SA when I wake up I normally check to see if your wave ended looks like it is my friend. 
 

❤️👌👊

2 hours ago, Pokey449 said:

But when one is so worn and exhausted the simplest mole hill seems like climbing Mt. Everest. But I guess all one can do is take it one minute, hour, day at a time. I wish I had a magic wand I could share. Wishing you the best. 

Hey thanks @Pokey449 we are fighting this s**t together, yes you are right the problem I have just had with 

the car shook me up proper, a wave mind thinking, still fragile mate. Now I was thinking about them monitor

you sleeping Pokey, HOW can it be a proper test if they give you a Benzo????? That has skewed it right away.

What method of thinking do they possess??? No wonder we are in the state we are in with lack of proper knowledge

from SO CALLED experts (not) Anyway I hope you are doing OK my good man. We are with you all the way.

Take care,          B.🤞🙏👍

Edited February 8Feb 8 by NT1100B
spelling

Hi all, well a fairly miserable day fluctuating between 0-3 all day, more lows than highs though, a weird

day really. Now I have been looking at other cars on the internet, but I ain't going to get a huge amount

more than I have paid out on it this last year, with a rough estimate of what this last Bill will maybe be I

will have spent £1800, and asking AI it says I have just repaired most of the hardest wearing parts so.....

 

 

So yes my mind has been mulling over that and the motorbike and PWD all day, so hence been miserable                                                              and flat, but every so often lifting a bit....but then dropping again, like I say a weird day. But anyway I will                                                                see how the night goes, damned keyboard is playing up, is that my next breakage????? it won't drop a line                                                            not sure what's  up, so yes it will be another sleep reset, and horrible awakening as NORMAL. But it's onwards                                                    and upwards I plod.                                                           .                                                                                                                                                 Take care all,              B.🤞    

It's difficult to make big decisions in this, and it affects our thinking so much.

 

I try to put off decisions for when my thinking feels at least somewhat clear.

I think worrying about money and having that as an added stress doesn’t help at all.

imagine if tomorrow you were gifted 1 million! Your WD wouldn’t go away, but the extra stress, worry and second fear would…

I just think it doesn’t help.

something like that would send me in to a spin too, I had to sort my car when my work car went back in December when I quit the NHS after 9 months sick. I had to order a new car and work out what we could afford and just doing the paperwork was so exhausting!

 

I’ve lifted in to a dirty window today from about 10.30am. Fingers crossed it lasts. It’s the best window I’ve had for 2.5 weeks xx 

Sorry that you’ve had a tough day B, not surprising as others have said with the stress and worry over the car. I hope you can give yourself some grace over the fact that you’ve navigated a tough week with alot of strength and determination and are understandably rung out from it.

Sending you some ease 🙏, take care 

23 hours ago, Chippy said:

I enjoy this 🤣

We're all glad you're amused Chippy boy, as you guys amuse the heck out of us. 😅😂🤣

10 hours ago, Its-me-Rosie said:

I’ve lifted in to a dirty window today from about 10.30am. Fingers crossed it lasts. It’s the best window I’ve had for 2.5 weeks xx 

Hi @Its-me-Rosie I am pleased you have lifted Rosie, that gives you some relief from the living hell at least

I am hoping it becomes a clearer window and lasts until you recover. I have awoke in horrible state first thing

but have calmed down and have lifted a bit now after my walk, 4.30am now. So fingers crossed for our day ahead.

Take care Rosie and wishing you all the best.         B.🙏🤞🌷 

9 hours ago, Emsy said:

Sending you some ease 🙏, take care 

Thanks @Emsy That means a lot. I hope you are doing better, yes in wd our minds are very fragile to stressful

situations like the car breaking down, on a tight budget at the moment and the wave brain catastrophizes things

dramatically, NOT GOOD. But onwards we plod, the end goal is the same, we WANT to RECOVER and live again.🤞

Take great care,         B.🤞🙏🌷💙

41 minutes ago, gardengirl2 said:

We're all glad you're amused Chippy boy, as you guys amuse the heck out of us. 😅😂🤣

🤣🤣🤣🤣🤣 so funny. 
 

I feel the need to launch into some Cockney rhyming slang!

10 hours ago, Luke said:

I try to put off decisions for when my thinking feels at least somewhat clear.

Thanks @Luke yes that's wise thinking, No decisions with a wave mind.

The thing is by the the time this bill is paid, as I said above, I won't get a huge amount more for it, the

one that's the fear is the bloody electric hand brake, according what I have seen online it can be manually

unwound, some mechanism in the boot, I will confirm this when I pick the car up. So that and starter motor.

Tyres are as new, I already have new brake pads ready waiting for front brakes. SO a tricky one.🤔

Take care,     B.🤞

 

Morning all, long back off my 3.30am walk, wet out this morning so brolly needed, but rain eased as I got home.

So I awoke on a 1 this morning feeling horrible as normal, but I have lifted to a 3 now, so 🤞 how the day pans out.

Keyboard, touch wood seems to be back to normal this morning, when I shut it down last night I went over it with

the hoover, quite a lot of crumbs on it.🤣

 

So what's today going to bring? I don't think my car will be fixed today, although it shouldn't take long to fit an alternator.

Well that's if that was the problem and there isn't other things wrong. But no, I think now it will be that, as the battery

should have been charged with a 120miles run. So 🤞. Decisions on the motorbike this week as well, but really I didn't

want to spend on another car when I need the money for living expenses while still in PWD.                                                                                                                                                                                                                                                                                                                                  Spoke too soon with keyboard, playing up again. Surely not MORE expense. Well the day is deteriorating  already, not good

Oh well it will be what it will be, lets just keep plodding.🤞

Take care all,          B.🤞    

34 minutes ago, NT1100B said:

I awoke on a 1 this morning feeling horrible as normal, but I have lifted to a 3 now, so 🤞 how the day pans out.

Morning mate. Good to see you still breaking the sleep reset early on. Continued positive signs here for sure. 
 

35 minutes ago, NT1100B said:

Keyboard, touch wood seems to be back to normal this morning, when I shut it down last night I went over it with

the hoover, quite a lot of crumbs on it.🤣

Yes you need it to hold out for you!!! Not another thing. The crumb comment made me laugh though. 
 

So cars going in today right? And you think new alternator giving off dodgy voltage and hence the random electrical faults everywhere. Makes sense. 

13 minutes ago, Chippy said:

So cars going in today right? And you think new alternator giving off dodgy voltage and hence the random electrical faults everywhere. Makes sense. 

No @Chippy Stranded at Supermarket Saturday, car dead, all 4 wheels locked, couldn't lock the car

so breakdown truck needed, After loading we went around garages until we found one that could fix it.

So it's been there since 10am Saturday morning. I am just guessing what's wrong for now. But we think 

that might be the one.🤞   I will find out this week.

Take care,       B.🤞 

41 minutes ago, NT1100B said:

No @Chippy Stranded at Supermarket Saturday, car dead, all 4 wheels locked, couldn't lock the car

so breakdown truck needed, After loading we went around garages until we found one that could fix it.

So it's been there since 10am Saturday morning. I am just guessing what's wrong for now. But we think 

that might be the one.🤞   I will find out this week.

Take care,       B.🤞 

Got you. I missed the bit about the recovery to a garage. Well I hope they find the issue today bud. This IS the last thing you need.  🤞

Hope your day improves  @NT1100B
Just thinking, do you get out for fresh air at sunrise? 
That can help the brain the most to regulate sleep, going out at sunrise then getting as much light during the day as possible.

 

Just wondering if you’d try a 6am walk and catch the daybreak 🤷🏼‍♀️ may be worth a shot.  My sleep had improved since November but in this wave I’m still walking with morning cortisol sadly. I’ve tried the adrenal shot before bed with Himalayan sea salt in water but that doesn’t seem to help! It was worth a try though hey!!

 

my dirty window lasted most of yesterday and I was hopeful I’d wake up today without the intense agitation but sadly it’s here…previous windows it’s not there in the mornings, so clearly my wave is not yet over.

 

we go down to Heathrow today and off on holiday first thing tomorrow. Hoping I’m not in a wave or not sure I’ll get through the flight to be honest my agitation has been so insanely high in this wave. Probably the worst for a long time. 
 

Hoping your day lifts and hoping mine turns in to a dirty window again, 🙏 can cope with these mornings if I know it may lift!

 

hope you sort the keyboard

i can’t cope with any stress in a wave.

 

for me when I go in to a window it’s like a switch is flicked and this agitation and heavy feeling in my stomach just lifts and poof I’m 80% better. It’s so so weird one day I want it to go poof and never return!!

 

sending love

rosie x 

25 minutes ago, Its-me-Rosie said:

for me when I go in to a window it’s like a switch is flicked and this agitation and heavy feeling in my stomach just lifts and poof I’m 80% better. It’s so so weird one day I want it to go poof and never return!!

 

sending love

rosie x 

That's the one @Its-me-Rosie yes described perfectly, like flicking a swich. We I am wishing you a massive

window for your holiday, I hope it goes smooth and you have a fantastic time, you deserve it. So yes I know

I am still in the horror wave, I am very down now this morning, so it's 🤞 how it pans out.

Take care Rosie, and enjoy your holiday.              B.🤞☀️👍🌷 

Hi all, well stayed on a 3 today, and up and down day again really don't, I had to take the spare key to the garage because the boot lock was faulty, so a reprogramming job with that. Electrical gremlins. So wasn't feeling good, but motorcycle got a blast out, and it was dry, no road salt so time will find what problems ale the car. Not going to be cheap though. So I will see what sleep I get tonight, but still in a wave so it will be another reset and horrible wake up. But still PLODDING.

Take care all,       B🐫

Morning all, back off my 4am walk showers again so brolly needed, 6c so not too cold.

So awoke on a 1 after 4 hours broken sleep, not improved one jot yet. Horrible awakenings and

life not worth nothing at the moment. So still on a 1 now so wave still very much active, 2026 is

even worse than last year. Car could probably end up been scrapped, motorbike will be sold and

I will end up on foot. So with still no end anywhere in sight for PWD things are looking grim.

Take care all,            B.