Morning all, well awake from midnight again after 3 hours broken sleep and on a 1 so not too good.

I have just done my online groceries shop, delivered Saturday morning, so that's out of the way.

Still no bloody word about my car. Not really that bothered the state I am in as it was only used for

the food shop.

 

But looking online at cost of similar fix £1000-£1500 so not looking forward to the bill🤔 BUT this is

IF he can fix it?????  Car manufacturers often design them so only THEY can fix them....so?????

But hey at the moment the MAIN FIX IS ME X a million.  What use is a car without ME.

 

So yes still cheesed off with the rubbish sleep and the incredibly slow speed of healing, the horrible

wave feelings and symptoms are a killer, sheer torture. I honestly can't see me ever working again 

which is bad, and even worse with zero money coming in. Now I checked on my state pension, yesterday

and I do qualify for the FULL amount early 2027, so that's a relief.

 

BUT, that's just over a year away so I have to be careful money wise. ALL down to my health really....things

could change fast if I could miraculously recover....but I think that's dream on B.🤔 Oh, well B, keep plodding.

I am THE KING OF PLOD now, SO.....keep plodding I WILL.  1.45am, sod it I am going back to bed. catch you later.

Take care all,          B.🤞

11 hours ago, LostinCanada said:

Love you guys @NT1100B @Chippy @cheeky

I needed this. 🤣🤣🤣❤️❤️❤️

We love you too @LostinCanada you’re the BEST! X

2 hours ago, NT1100B said:

Morning all, well awake from midnight again after 3 hours broken sleep and on a 1 so not too good.

I have just done my online groceries shop, delivered Saturday morning, so that's out of the way.

Still no bloody word about my car. Not really that bothered the state I am in as it was only used for

the food shop.

Morning mate. Glad you’re not on -0 but 1 still not good. 

 

2 hours ago, NT1100B said:

But looking online at cost of similar fix £1000-£1500 so not looking forward to the bill🤔 BUT this is

IF he can fix it?????  Car manufacturers often design them so only THEY can fix them....so?????

But hey at the moment the MAIN FIX IS ME X a million.  What use is a car without ME.

Hope they can fix it and cheaply too but you’re right when it comes to electrics they make it so you need a super computer to get the job done. Frustrating. But as you say it’s just a car and YOUR all that matters so put that out your mind best you can. It will get done in time. 
 

2 hours ago, NT1100B said:

So yes still cheesed off with the rubbish sleep and the incredibly slow speed of healing, the horrible

wave feelings and symptoms are a killer, sheer torture. I honestly can't see me ever working again 

which is bad, and even worse with zero money coming in. Now I checked on my state pension, yesterday

and I do qualify for the FULL amount early 2027, so that's a relief.

Argh I feel you B but, sleep does improve with time. I’ve seen it myself. Never thought it was possible then all of a sudden it starts too. 
Glad you get the full pension. Most do one way or another. You’ve worked long enough you should! Like you say just got to get to there. And you will. 
 

2 hours ago, NT1100B said:

I am THE KING OF PLOD now, SO.....keep plodding I WILL.  1.45am, sod it I am going back to bed. catch you later.

Take care all,          B.🤞

That’s right mate King of Plod but also King of AR in my books. I feel honoured to serve at your feet sir! 🤴 👑 🐢 🐌 🥷 

38 minutes ago, Chippy said:

That’s right mate King of Plod but also King of AR in my books. I feel honoured to serve at your feet sir! 🤴 👑 🐢 🐌 🥷 

Love this

3 hours ago, NT1100B said:

dream on

This made me go down an Aerosmith rabbit hole. 🤣🎸🥁🎤✨

3 hours ago, NT1100B said:

I am THE KING OF PLOD now, SO.....keep plodding I WILL.

👑💜💜💜👑

This was the only throne i could find 🚽🚽🚽😳😳😳

 

4 minutes ago, LostinCanada said:

This was the only throne i could find

Oh no LIC, you’re most definitely Queen of AR! 👸 

1 hour ago, Chippy said:

Oh no LIC, you’re most definitely Queen of AR! 👸 

Don't give me any ideas @Chippy I think I may need to do a avatar of @LostinCanada

Hi and thanks all, well had my walk at 3.am, was very lethargic with low energy, miserable as sin really.

Did go back to bed again and dozed for 30 minutes, sent me back to a 0 again. This torture is beyond

belief. Still on a 0 now with the nausea and that loathsome horrible feeling on me, going to be a day in

hell again. I truly don't know how much longer I am going to put op with this. I have had enough.

Take care all,        B.  

9 minutes ago, NT1100B said:

Hi and thanks all, well had my walk at 3.am, was very lethargic with low energy, miserable as sin really.

Did go back to bed again and dozed for 30 minutes, sent me back to a 0 again. This torture is beyond

belief. Still on a 0 now with the nausea and that loathsome horrible feeling on me, going to be a day in

hell again. I truly don't know how much longer I am going to put op with this. I have had enough.

Take care all,        B.  

Oh B sorry bud. Hang in there mate. It’s all you must do now. It’s not fair any of this but hold your line my friend. Time so much time I know but it’s time is the healer. 💪👊👑

10 minutes ago, NT1100B said:

have had enough.

I don't blame you feeling like this , it's in humane and I wish you

a window soon . 

Hi B. Sorry you had another bum night and feeling s***y. It’s the pits. I can relate. I hope your day improves for you. Take care. 

Dear B., the same living Hell for me. We have to encourage each other to be able to survive.

Svetla

9 hours ago, NT1100B said:

back to a 0 again.

My day is just starting....I am praying your day had some improvement.....I wish I could make it better for you....we really are in this together. 💔💔💔

2 hours ago, Pokey449 said:

Hi B. Sorry you had another bum night and feeling s***y. It’s the pits. I can relate. I hope your day improves for you. Take care.

Hey thanks @Pokey449 Yes it means a LOT when we understand each other, another vicious morning up to 2pm

in a living hell. Worse than last year by a lump. DON'T know why, but a rough as hell ride, lifted slightly after 2pm, up 

to a 1-2 maybe, still well and truly grounded. High cortisol? PWD? high histamine? just have to keep plodding Bud,

but boy is it ROUGH.  I am sorry you are having it rough as well Pokey, take it slow and easy Bud. I think I am one of the unlucky ones.

Take care,        B.🤞

31 minutes ago, LostinCanada said:

My day is just starting....I am praying your day had some improvement.....I wish I could make it better for you....we really are in this together. 💔💔💔

Thanks @LostinCanada I sincerely hope you have a better day than me LIC🤞 My journey is getting worse

by the day, couldn't take much more than the horror of this morning. Lifted a bit after 2pm, but still the pits.

Take care, and please stay safe.       B.🤞🙏💙

2 hours ago, skamen said:

We have to encourage each other to be able to survive.

Svetla

Stay strong @skamen WE have to, dig deep tor the strength and we WILL pull through.

Take care Svetla,           B.🙏🙏🙏🤞

9 hours ago, cheeky said:

I don't blame you feeling like this , it's in humane and I wish you

a window soon . 

Thanks @cheeky and Bless you, I am afraid windows seem a bit thin on the ground for me somehow.

Lifted slightly after 2pm, but still in a horrible place, this PWD malarky STINKS.

Take great care Cheeky and please take it slow.      B.🙏 🤞☀️

Hi folks, so I have said it all above really, my journey is getting worse, and another day in HELL.

Take care all,       B.

47 minutes ago, NT1100B said:

my journey is getting worse, and another day in HELL.

 I hate seeing you suffer. I just wish I could make it better. ❤️🙏

 

Edited February 27Feb 27 by LostinCanada

49 minutes ago, NT1100B said:

Hi folks, so I have said it all above really, my journey is getting worse, and another day in HELL.

Take care all,       B.

So sorry you're suffering so badly @NT1100B such a brutal journey, I wish I could snap my finger and it would all go away!

Hang in there, you are strong and resilient, I truly believe it's temporary setback since I've seen quite a few who got worse just to get better so don't lose hope, praying for your relief!

 

 

Edited February 27Feb 27 by Fullhealing

3 hours ago, NT1100B said:

Hi folks, so I have said it all above really, my journey is getting worse, and another day in HELL.

Take care all,       B.

B I've read some people don't get waves and then all the sudden after a long time they wake up and they feel normal

again . Don't loss heart and don't listen to your thoughts there fear relates . 
we're all here for you . 

 

Morning B. How are you my friend? Hope you’ve got some extra sleep today. 

Morning and THANKS all, back of my 5.15am walk, later but NOT because of more sleep. I awoke after

4 hours very broken sleep after the most hellish and worst night to date. I am getting very near ringing

the crisis team. That or suicide. Am at my very limit now.

 

Now I have a food delivery 7.30-8.30am this morning, which I will handle, but things really are now that

bad, if it gets worse the crisis team WILL be called. So I will see how the day pans out, but each day now

just seems to be getting worse, severe nausea not lifting until mid afternoon, sleep getting worse and every

other symptom also getting worse. Mirtazapine is a drug from HELL itself.🤬

Take care all,      B.  

12 hours ago, LostinCanada said:

I hate seeing you suffer. I just wish I could make it better. ❤️🙏

 

Thanks @LostinCanada your support means the world to me. Thanks. I hope you are doing OK.🤞

Take great care,          B.🙏🤞💙

9 hours ago, cheeky said:

we're all here for you . 

Thanks @cheeky very much appreciated.

Take great care,        B.🙏🤞☀️

12 hours ago, Fullhealing said:

praying for your relief!

 

Thanks @Fullhealing very much appreciated, I hope you are doing ok, please stay strong.

Take great care,         B.🙏🤞🌷